Murtagh, Fliss E. M., Ramsenthaler, Christina ORCID: 0000-0002-9996-1818, Firth, Alice, Groeneveld, Esther I., Lovell, Natasha, Simon, Steffen T., Denzel, Johannes, Guo, Ping ORCID: 0000-0003-0979-7047, Bernhardt, Florian, Schildmann, Eva, van Oorschot, Birgitt, Hodiamont, Farina, Streitwieser, Sabine, Higginson, Irene J. and Bausewein, Claudia (2019). A brief, patient- and proxy-reported outcome measure in advanced illness: Validity, reliability and responsiveness of the Integrated Palliative care Outcome Scale (IPOS). Palliat. Med., 33 (8). S. 1045 - 1058. LONDON: SAGE PUBLICATIONS LTD. ISSN 1477-030X

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Abstract

Background: Few measures capture the complex symptoms and concerns of those receiving palliative care. Aim: To validate the Integrated Palliative care Outcome Scale, a measure underpinned by extensive psychometric development, by evaluating its validity, reliability and responsiveness to change. Design: Concurrent, cross-cultural validation study of the Integrated Palliative care Outcome Scale - both (1) patient self-report and (2) staff proxy-report versions. We tested construct validity (factor analysis, known-group comparisons, and correlational analysis), reliability (internal consistency, agreement, and test-retest reliability), and responsiveness (through longitudinal evaluation of change). Setting/participants: In all, 376 adults receiving palliative care, and 161 clinicians, from a range of settings in the United Kingdom and Germany Results: We confirm a three-factor structure (Physical Symptoms, Emotional Symptoms and Communication/Practical Issues). Integrated Palliative care Outcome Scale shows strong ability to distinguish between clinically relevant groups; total Integrated Palliative care Outcome Scale and Integrated Palliative care Outcome Scale subscale scores were higher - reflecting more problems - in those patients with 'unstable' or 'deteriorating' versus 'stable' Phase of Illness (F = 15.1, p < 0.001). Good convergent and discriminant validity to hypothesised items and subscales of the Edmonton Symptom Assessment System and Functional Assessment of Cancer Therapy-General is demonstrated. The Integrated Palliative care Outcome Scale shows good internal consistency (alpha = 0.77) and acceptable to good test-retest reliability (60% of items k(w) > 0.60). Longitudinal validity in form of responsiveness to change is good. Conclusion: The Integrated Palliative care Outcome Scale is a valid and reliable outcome measure, both in patient self-report and staff proxy-report versions. It can assess and monitor symptoms and concerns in advanced illness, determine the impact of healthcare interventions, and demonstrate quality of care. This represents a major step forward internationally for palliative care outcome measurement.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Murtagh, Fliss E. M.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ramsenthaler, ChristinaUNSPECIFIEDorcid.org/0000-0002-9996-1818UNSPECIFIED
Firth, AliceUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Groeneveld, Esther I.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Lovell, NatashaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Simon, Steffen T.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Denzel, JohannesUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Guo, PingUNSPECIFIEDorcid.org/0000-0003-0979-7047UNSPECIFIED
Bernhardt, FlorianUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Schildmann, EvaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
van Oorschot, BirgittUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Hodiamont, FarinaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Streitwieser, SabineUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Higginson, Irene J.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Bausewein, ClaudiaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-143637
DOI: 10.1177/0269216319854264
Journal or Publication Title: Palliat. Med.
Volume: 33
Number: 8
Page Range: S. 1045 - 1058
Date: 2019
Publisher: SAGE PUBLICATIONS LTD
Place of Publication: LONDON
ISSN: 1477-030X
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
SYMPTOM ASSESSMENT SYSTEM; QUALITY-OF-LIFE; LONG-TERM-CARE; CANCER-PATIENTS; PSYCHOMETRIC VALIDATION; IMPORTANT DIFFERENCE; CLINICAL CARE; HEALTH-STATUS; END; DISEASEMultiple languages
Health Care Sciences & Services; Public, Environmental & Occupational Health; Medicine, General & InternalMultiple languages
Refereed: Yes
URI: http://kups.ub.uni-koeln.de/id/eprint/14363

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