Schmidt, Anna, Ernstmann, Nicole ORCID: 0000-0001-7685-6110, Wesselmann, Simone, Pfaff, Holger ORCID: 0000-0001-9154-6575, Wirtz, Markus and Kowalski, Christoph (2016). After initial treatment for primary breast cancer: information needs, health literacy, and the role of health care workers. Support. Care Cancer, 24 (2). S. 563 - 572. NEW YORK: SPRINGER. ISSN 1433-7339

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Abstract

After a short hospital stay of just some days follows long-term outpatient care for breast cancer patients. The aim of the study is to describe the information needs of breast cancer outpatients and to get in touch with aspects of health literacy, as well as contact various health care workers. In a multicenter study, patients were asked about their information needs 10 weeks after surgery. The analysis on hand includes data about 1248 female patients. In addition to descriptive analyses identifying the most prevalent information needs, logistic regression analyses were calculated to identify factors associated with these. The results show that information needs of breast cancer outpatients are mainly in follow-up after acute treatment, coping with long-term side effects, and heredity of breast cancer. In addition to sociodemographic patient characteristics, perceived helpful contacts with various health care workers as well as a satisfactory patient's level of health literacy reduced the probability of unmet information needs. Breast cancer outpatients have numerous information needs. In addition to provide information at the right time regarding a specific disease phase, it is important that health professionals' support affected breast cancer patients in coping with the new situation.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Schmidt, AnnaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ernstmann, NicoleUNSPECIFIEDorcid.org/0000-0001-7685-6110UNSPECIFIED
Wesselmann, SimoneUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Pfaff, HolgerUNSPECIFIEDorcid.org/0000-0001-9154-6575UNSPECIFIED
Wirtz, MarkusUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kowalski, ChristophUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-286722
DOI: 10.1007/s00520-015-2814-6
Journal or Publication Title: Support. Care Cancer
Volume: 24
Number: 2
Page Range: S. 563 - 572
Date: 2016
Publisher: SPRINGER
Place of Publication: NEW YORK
ISSN: 1433-7339
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
FOLLOW-UP; SERVICE; SUPPORTMultiple languages
Oncology; Health Care Sciences & Services; RehabilitationMultiple languages
Refereed: Yes
URI: http://kups.ub.uni-koeln.de/id/eprint/28672

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