Universität zu Köln

Strupp, J., Voltz, R. and Golla, H. (2016). Opening locked doors: Integrating a palliative care approach into the management of patients with severe multiple sclerosis. Mult. Scler. J., 22 (1). S. 13 - 19. LONDON: SAGE PUBLICATIONS LTD. ISSN 1477-0970

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Abstract

Patients severely affected by multiple sclerosis (MS) have a large range of unmet needs. Although initially counterintuitive, specialized palliative care (PC) may be beneficial for these patients and their relatives. PC has advanced greatly in recent years, yet it is still predominantly tumour patients who profit from this. For MS, a first randomized phase II trial has already demonstrated significant benefits for patients and their caregivers when PC was included in their care. However, there are barriers: neurologists not convinced about PC, or PC not taking on MS patients. Studies have shown that misunderstandings and a lack of information among healthcare professionals about the roles and services of PC for MS are still prevalent. This topical review will give an overview of the unmet needs of patients as well as the possible benefits and barriers of PC for MS, and will describe models of services on how to open locked doors.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Strupp, J. UNSPECIFIED UNSPECIFIED UNSPECIFIED Voltz, R. UNSPECIFIED UNSPECIFIED UNSPECIFIED Golla, H. UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-292032
DOI:	10.1177/1352458515608262
Journal or Publication Title:	Mult. Scler. J.
Volume:	22
Number:	1
Page Range:	S. 13 - 19
Date:	2016
Publisher:	SAGE PUBLICATIONS LTD
Place of Publication:	LONDON
ISSN:	1477-0970
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language HEALTH-PROFESSIONALS; SUICIDAL IDEATION; UNMET NEEDS; PEOPLE; PREVALENCE; VALIDATION; GERMANY; CANCER; MODEL; TRIAL Multiple languages Clinical Neurology; Neurosciences Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/29203