Steeb, Theresa, Wessely, Anja, Alter, Mareike, Bayerl, Christiane, Bender, Armin, Bruning, Guido, Dabrowski, Evelyn, Debus, Dirk, Devereux, Nina, Dippel, Edgar, Drexler, Konstantin, Duecker, Pia, Dummer, Reinhard, Emmert, Steffen, Elsner, Peter, Enk, Alexander, Gebhardt, Christoffer, Gesierich, Anja, Goebeler, Matthias, Goerdt, Sergij, Goetze, Steven, Gutzmer, Ralf, Haferkamp, Sebastian, Hansel, Gesina, Hassel, Jessica C., Heinzerling, Lucie, Kaehler, Katharina C., Kaume, Kjell M., Krapf, Wolfgang, Kreuzberg, Nicole, Lehmann, Percy, Livingstone, Elisabeth, Loeffler, Harald, Loquai, Carmen, Mauch, Cornelia, Mangana, Johanna, Meier, Friedegund, Meissner, Markus, Moritz, Rose K. C., Maul, Lara Valeska, Mueller, Verena, Mohr, Peter, Navarini, Alexander, Van Nguyen, Ahn, Pfeiffer, Christiane, Pfoehler, Claudia, Posch, Christian, Richtig, Erika, Rompel, Rainer, Sachse, Michael M., Sauder, Stefanie, Schadendorf, Dirk, Schatton, Kerstin, Schulze, Hans-Joachim, Schultz, Erwin, Schilling, Bastian ORCID: 0000-0001-8859-4103, Schmuth, Matthias, Simon, Jan C., Streit, Markus, Terheyden, Patrick, Thiem, Alexander, Tueting, Thomas, Welzel, Julia, Weyandt, Gerhard, Wesselmann, Ulrich, Wollina, Uwe, Ziemer, Mirjana, Zimmer, Lisa, Zutt, Markus, Berking, Carola, Schlaak, Max and Heppt, Markus, V . Patterns of care and follow-up care of patients with uveal melanoma in German-speaking countries: a multinational survey of the German Dermatologic Cooperative Oncology Group (DeCOG). J. Cancer Res. Clin. Oncol.. NEW YORK: SPRINGER. ISSN 1432-1335

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Abstract

Purpose Uveal melanoma (UM) is an orphan cancer of high unmet medical need. Current patterns of care and surveillance remain unclear as they are situated in an interdisciplinary setting. Methods A questionnaire addressing the patterns of care and surveillance in the management of patients with uveal melanoma was distributed to 70 skin cancer centers in Austria, Germany and Switzerland. Frequency distributions of responses for each item of the questionnaire were calculated. Results 44 of 70 (62.9%) skin cancer centers completed the questionnaire. Thirty-nine hospitals were located in Germany (88.6%), three in Switzerland (6.8%) and two in Austria (4.5%). The majority (68.2%) represented university hospitals. Most patients with metastatic disease were treated in certified skin cancer centers (70.7%, 29/41). Besides, the majority of patients with UM were referred to the respective skin cancer center by ophthalmologists (87.2%, 34/39). Treatment and organization of follow-up of patients varied across the different centers. 35.1% (14/37) of the centers stated to not perform any screening measures. Conclusion Treatment patterns of patients with uveal melanoma in Germany, Austria and Switzerland remain extremely heterogeneous. A guideline for the treatment and surveillance is urgently needed.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Steeb, TheresaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Wessely, AnjaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Alter, MareikeUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Bayerl, ChristianeUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Bender, ArminUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Bruning, GuidoUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Dabrowski, EvelynUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Debus, DirkUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Devereux, NinaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Dippel, EdgarUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Drexler, KonstantinUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Duecker, PiaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Dummer, ReinhardUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Emmert, SteffenUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Elsner, PeterUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Enk, AlexanderUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Gebhardt, ChristofferUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Gesierich, AnjaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Goebeler, MatthiasUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Goerdt, SergijUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Goetze, StevenUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Gutzmer, RalfUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Haferkamp, SebastianUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Hansel, GesinaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Hassel, Jessica C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Heinzerling, LucieUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kaehler, Katharina C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kaume, Kjell M.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Krapf, WolfgangUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kreuzberg, NicoleUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Lehmann, PercyUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Livingstone, ElisabethUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Loeffler, HaraldUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Loquai, CarmenUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Mauch, CorneliaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Mangana, JohannaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Meier, FriedegundUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Meissner, MarkusUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Moritz, Rose K. C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Maul, Lara ValeskaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Mueller, VerenaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Mohr, PeterUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Navarini, AlexanderUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Van Nguyen, AhnUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Pfeiffer, ChristianeUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Pfoehler, ClaudiaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Posch, ChristianUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Richtig, ErikaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Rompel, RainerUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Sachse, Michael M.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Sauder, StefanieUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Schadendorf, DirkUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Schatton, KerstinUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Schulze, Hans-JoachimUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Schultz, ErwinUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Schilling, BastianUNSPECIFIEDorcid.org/0000-0001-8859-4103UNSPECIFIED
Schmuth, MatthiasUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Simon, Jan C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Streit, MarkusUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Terheyden, PatrickUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Thiem, AlexanderUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Tueting, ThomasUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Welzel, JuliaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Weyandt, GerhardUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Wesselmann, UlrichUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Wollina, UweUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ziemer, MirjanaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Zimmer, LisaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Zutt, MarkusUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Berking, CarolaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Schlaak, MaxUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Heppt, Markus, VUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-310949
DOI: 10.1007/s00432-020-03450-0
Journal or Publication Title: J. Cancer Res. Clin. Oncol.
Publisher: SPRINGER
Place of Publication: NEW YORK
ISSN: 1432-1335
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
GUIDELINES; DIAGNOSISMultiple languages
OncologyMultiple languages
URI: http://kups.ub.uni-koeln.de/id/eprint/31094

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