Koehler, Felix C., Blomberg, Linda, Brehm, Thomas Theo, Buettner, Stefan, Cornely, Oliver A., Degen, Olaf, Di Cristanziano, Veronica, Dolff, Sebastian, Eberwein, Lukas, Hoxha, Elion, Hoyer-Allo, K. Johanna R., Rudolf, Sarah, Spaeth, Martin R., Wanken, Manuel, Mueller, Roman-Ulrich and Burst, Volker (2021). Development and design of the Hantavirus registry - HantaReg - for epidemiological studies, outbreaks and clinical studies on hantavirus disease. Clin. Kidney J., 14 (11). S. 2365 - 2371. OXFORD: OXFORD UNIV PRESS. ISSN 2048-8513

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Abstract

Background. Frequent outbreaks around the globe and endemic appearance in different parts of the world emphasize the substantial risk of hantavirus diseases. Increasing incidence rates, trends of changing distribution of hantavirus species and new insights into clinical courses of hantavirus diseases call for multinational surveillance. Furthermore, evidence-based guidelines for the management of hantavirus diseases and scoring systems, which allow stratification of patients into risk categories, are lacking. Methods. Hantavirus registry (HantaReg) is a novel registry platform facilitating multinational research of hantavirus-caused diseases, such as haemorrhagic fever with renal syndrome (HFRS) and hantavirus cardiopulmonary syndrome (HCPS). HantaReg provides an electronic case report form and uses the General Data Protection Regulation compliant platform clinicalsurveys.net, which can be accessed from any internet browser in the world. Having a modular structure, the registry platform is designed to display or hide questions and items according to the documented case (e.g. patient with HFRS versus HCPS) to facilitate fast, but standardized, data entry. Information categories documented in HantaReg are demographics, pre-existing diseases, clinical presentation, diagnostic and therapeutic approaches, as well as outcome. Conclusions. HantaReg is a novel, ready-to-use platform for clinical and epidemiological studies on hantavirus diseases and facilitates the documentation of the disease course associated with hantavirus infections. HantaReg is expected to promote international collaboration and contributes to improving patient care through the analysis of diagnostic and treatment pathways for hantavirus diseases, providing evidence for robust treatment recommendations. Moreover, HantaReg enables the development of prognosis-indicating scoring systems for patients with hantavirus disease.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Koehler, Felix C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Blomberg, LindaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Brehm, Thomas TheoUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Buettner, StefanUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Cornely, Oliver A.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Degen, OlafUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Di Cristanziano, VeronicaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Dolff, SebastianUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Eberwein, LukasUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Hoxha, ElionUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Hoyer-Allo, K. Johanna R.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Rudolf, SarahUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Spaeth, Martin R.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Wanken, ManuelUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Mueller, Roman-UlrichUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Burst, VolkerUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-595756
DOI: 10.1093/ckj/sfab053
Journal or Publication Title: Clin. Kidney J.
Volume: 14
Number: 11
Page Range: S. 2365 - 2371
Date: 2021
Publisher: OXFORD UNIV PRESS
Place of Publication: OXFORD
ISSN: 2048-8513
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
PULMONARY SYNDROME; HEMORRHAGIC-FEVER; PUUMALA VIRUS; UNITED-STATES; INFECTION; ARGENTINA; GERMANYMultiple languages
Urology & NephrologyMultiple languages
URI: http://kups.ub.uni-koeln.de/id/eprint/59575

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