Universität zu Köln

Dillen, Kim ORCID: 0000-0002-0270-3338, Joshi, Melanie, Krumm, Norbert, Hesse, Michaela ORCID: 0000-0002-2082-8513, Brunsch, Holger, Schmidt, Holger, Strupp, Julia, Radbruch, Lukas, Rolke, Roman, Voltz, Raymond and Consortium, Apvel (2021). Availability as key determinant in the palliative home care setting from the patients' and family caregivers' perspectives: A quantitative-qualitative-content analysis approach. Palliat. Support Care, 19 (5). S. 570 - 580. NEW YORK: CAMBRIDGE UNIV PRESS. ISSN 1478-9523

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Abstract

Objective A sense of security is important in palliative home care. Yet, knowledge about which components contribute most to feeling secure from the patients' and family caregivers' perspectives, especially since the introduction of specialist palliative home care, is sparse. The goal of the current study was to determine the key components contributing to a sense of security and how they relate to each other as experienced by patients and family caregivers in specialist and generalist palliative home care. Methods The current sub-study, as part of a larger study, was performed in different regions in Germany. Palliative care patients and family caregivers of at least 18 years of age, being cared for at home were interviewed using semi-structured interview guides following a three-factor model and analyzed by using a combined quantitative-qualitative-content approach. Results One hundred and ninty-seven patients and 10 carers completed interviews between December 2017 and April 2019. The majority of patients were diagnosed with an oncological disease. Sense of security was mentioned particularly often suggesting its high relevance. We identified nine subcategories that were all mentioned more frequently by specialist than generalist palliative home care recipients in the following order of priority and relation: (i) patient-centeredness: availability, provision of information/education, professional competence, patient empowerment, and trust (ii) organizational work: comprehensive responsibility, external collaboration, and internal cooperation, and (iii) direct communication. Significance of results The work of specialist palliative home care services in particular was perceived as very effective and beneficial. Our findings confirm a previously developed three-factor model allowing for generalizability and revealed that availability was most important for improving the sense of security for effective palliative home care.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Dillen, Kim UNSPECIFIED orcid.org/0000-0002-0270-3338 UNSPECIFIED Joshi, Melanie UNSPECIFIED UNSPECIFIED UNSPECIFIED Krumm, Norbert UNSPECIFIED UNSPECIFIED UNSPECIFIED Hesse, Michaela UNSPECIFIED orcid.org/0000-0002-2082-8513 UNSPECIFIED Brunsch, Holger UNSPECIFIED UNSPECIFIED UNSPECIFIED Schmidt, Holger UNSPECIFIED UNSPECIFIED UNSPECIFIED Strupp, Julia UNSPECIFIED UNSPECIFIED UNSPECIFIED Radbruch, Lukas UNSPECIFIED UNSPECIFIED UNSPECIFIED Rolke, Roman UNSPECIFIED UNSPECIFIED UNSPECIFIED Voltz, Raymond UNSPECIFIED UNSPECIFIED UNSPECIFIED Consortium, Apvel UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-583957
DOI:	10.1017/S147895152000125X
Journal or Publication Title:	Palliat. Support Care
Volume:	19
Number:	5
Page Range:	S. 570 - 580
Date:	2021
Publisher:	CAMBRIDGE UNIV PRESS
Place of Publication:	NEW YORK
ISSN:	1478-9523
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language TEAMS IMPROVE OUTCOMES; OF-LIFE CARE; CANCER-PATIENTS; EXPERIENCES; SECURITY; END; MANAGEMENT; SENSE; SAPV Multiple languages Health Policy & Services Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/58395