Universität zu Köln

Dilien, Kim, Ebke, Markus, Koch, Andreas, Becker, Ingrid, Ostgathe, Christoph, Voltz, Raymond and Golla, Heidrun (2019). Validation of a palliative care outcome measurement tool supplemented by neurological symptoms (HOPE plus ): Identification of palliative concerns of neurological patients. Palliat. Med., 33 (9). S. 1221 - 1232. LONDON: SAGE PUBLICATIONS LTD. ISSN 1477-030X

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Abstract

Background: There is growing interest to integrate palliative care and its structures into the care of neurological patients. However, in Germany there is no comprehensive assessment tool capturing the symptoms of patients with advanced neurological diseases. Aim: To validate a newly developed palliative care measurement tool based on an extension of the validated core documentation system Hospice and Palliative Care Evaluation considering additional neurological issues (HOPE+). Design: Prospective, observational study using HOPE+ and as external criteria, the Eastern Cooperative Oncology Group (ECOG) performance status and the 12 months surprise question (12-SQ) in a neurological population, and assessment for its construct validity and diagnostic accuracy. Setting/participants: All newly admitted patients to the Department of Neurorehabilitation, Dr. Becker Rhein-Sieg-Clinic aged 18-100 years (#DRKS00010947). Results: Data from 263 patients (63 +/- 14 years of age) were analyzed. HOPE+ revealed a moderately correlated six-factor structure (r = -0.543-0.525). Correlation analysis to evaluate discriminant validity using ECOG as external criterion was high (rs(261) = 0.724, p < 0.001) and confirmed for severely affected patients by adding the 12-SQ (No-group: 48.00 +/- 14.92 vs Yes-group: 18.67 +/- 7.57, p < 0.009). Operating characteristics show satisfactory diagnostic accuracy (area under the curve: 0.746 +/- 0.049, 95% confidence interval = 0.650-0.842). Conclusion: HOPE+ demonstrates promising psychometric properties. It helps to assess palliative care issues of patients in neurological settings and, in combination with the 12-SQ, conceivably conditions when to initiate the palliative care approach in a population underrepresented in palliative care structures so far.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Dilien, Kim UNSPECIFIED UNSPECIFIED UNSPECIFIED Ebke, Markus UNSPECIFIED UNSPECIFIED UNSPECIFIED Koch, Andreas UNSPECIFIED UNSPECIFIED UNSPECIFIED Becker, Ingrid UNSPECIFIED UNSPECIFIED UNSPECIFIED Ostgathe, Christoph UNSPECIFIED UNSPECIFIED UNSPECIFIED Voltz, Raymond UNSPECIFIED UNSPECIFIED UNSPECIFIED Golla, Heidrun UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-135367
DOI:	10.1177/0269216319861927
Journal or Publication Title:	Palliat. Med.
Volume:	33
Number:	9
Page Range:	S. 1221 - 1232
Date:	2019
Publisher:	SAGE PUBLICATIONS LTD
Place of Publication:	LONDON
ISSN:	1477-030X
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language EPISODIC BREATHLESSNESS; NONCANCER PATIENTS; SURPRISE QUESTION; LUNG-CANCER; DEATH; DIAGNOSIS; GERMANY; PEOPLE; COHORT; END Multiple languages Health Care Sciences & Services; Public, Environmental & Occupational Health; Medicine, General & Internal Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/13536