Universität zu Köln

Neidenbach, R., Achenbach, S., Andonian, C., Beckmann, J., Biber, S., Dittrich, S., Ewert, P., Freilinger, S., Huntgeburth, M., Nagdyman, N., Oberhoffer, R., Pieper, L., von Kodolitsch, Y., Weyand, M., Bauer, U. M. M. and Kaemmerer, H. (2019). Medical care of adults with congenital heart diseases Present and future. Herz, 44 (6). S. 553 - 573. MUNICH: URBAN & VOGEL. ISSN 1615-6692

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Abstract

Congenital heart diseases (CHD) are the most common types of congenital organ defects. Thanks to medical progress in congenital cardiology and heart surgery, most children with CHD reach adulthood. Despite primarily successful treatment residual and subsequent conditions as well as (non)cardiac comorbidities can influence the chronic course of the disease and lead to a higher morbidity and mortality. Adults with congenital heart disease (ACHD) in Germany are not tied to the healthcare structure despite the great need for aftercare. According to the results of the medical care of ACHD (MC-ACHD) study, ACHD centers and specialists in Germany are insufficiently perceived despite increased complication rates and the great need for specialist guidance. General practitioners and patients are not adequately informed about existing ACHD facilities. A better awareness of the ACHD problem should be created at the level of primary medical supply in order to optimize care and to reduce morbidity and mortality. Improved future-oriented patient care includes lifelong regular follow-up and the possibility of interdisciplinary, integrated medical care of CHD.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Neidenbach, R. UNSPECIFIED UNSPECIFIED UNSPECIFIED Achenbach, S. UNSPECIFIED UNSPECIFIED UNSPECIFIED Andonian, C. UNSPECIFIED UNSPECIFIED UNSPECIFIED Beckmann, J. UNSPECIFIED UNSPECIFIED UNSPECIFIED Biber, S. UNSPECIFIED UNSPECIFIED UNSPECIFIED Dittrich, S. UNSPECIFIED UNSPECIFIED UNSPECIFIED Ewert, P. UNSPECIFIED UNSPECIFIED UNSPECIFIED Freilinger, S. UNSPECIFIED UNSPECIFIED UNSPECIFIED Huntgeburth, M. UNSPECIFIED UNSPECIFIED UNSPECIFIED Nagdyman, N. UNSPECIFIED UNSPECIFIED UNSPECIFIED Oberhoffer, R. UNSPECIFIED UNSPECIFIED UNSPECIFIED Pieper, L. UNSPECIFIED UNSPECIFIED UNSPECIFIED von Kodolitsch, Y. UNSPECIFIED UNSPECIFIED UNSPECIFIED Weyand, M. UNSPECIFIED UNSPECIFIED UNSPECIFIED Bauer, U. M. M. UNSPECIFIED UNSPECIFIED UNSPECIFIED Kaemmerer, H. UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-142953
DOI:	10.1007/s00059-019-4820-9
Journal or Publication Title:	Herz
Volume:	44
Number:	6
Page Range:	S. 553 - 573
Date:	2019
Publisher:	URBAN & VOGEL
Place of Publication:	MUNICH
ISSN:	1615-6692
Language:	German
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language MECHANICAL CIRCULATORY SUPPORT; QUALITY-OF-LIFE; INFECTIVE ENDOCARDITIS; HEALTH-CARE; INTERAGENCY REGISTRY; EISENMENGER SYNDROME; CLINICAL-ASPECTS; RISK-FACTORS; MANAGEMENT; FAILURE Multiple languages Cardiac & Cardiovascular Systems Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/14295