Universität zu Köln

Samel, Christina, Albus, Christian, Tebest, Ralf, Forster, Kristin, Luengen, Markus, Niecke, Alexander, Pfaff, Holger ORCID: 0000-0001-9154-6575 and Peters, Klaus M. (2019). Upcoming challenges in providing care for thalidomide impaired individuals. Pflege, 32 (3). S. 137 - 146. BERN 9: VERLAG HANS HUBER. ISSN 1664-283X

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Abstract

Background: Between 1957 and 1962 an approximate 5000 children were born in Germany with severe birth defects as their mothers took the substance Thalidomide during pregnancy as a sedative and effective relief from morning sickness. Objective: The aim of this study was to describe the care and assistance needed by the individuals impaired by Thalidomide and indicate upcoming challenges. A further aim was to determine the association between the impairment type and the care needed. Methods: Cross sectional study, 202 individuals impaired by Thalidomide were examined by two orthopedists as well as surveyed via questionnaire. They were also evaluated mentally by either a psychiatrist or psychotherapist. The need for care was determined by the acquired legal status for long-term care. Results: The sample divides roughly into two groups: the ones with impairments in their extremities and those who are not affected in their extremities. Many of the ones affected in their extremities are already dependent on assistance and need to be nursed. Those who are depending on assistance and care are mostly informally cared for. Conclusions: The prevalence for long-term care is already higher than in the age-adjusted general population in Germany, while formal care is underutilized. Therefore a challenge will be to make a shift from informal care to professional care providers as the informally caring (sometimes actually the parents of the impaired) are aging along with the ones they care for.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Samel, Christina UNSPECIFIED UNSPECIFIED UNSPECIFIED Albus, Christian UNSPECIFIED UNSPECIFIED UNSPECIFIED Tebest, Ralf UNSPECIFIED UNSPECIFIED UNSPECIFIED Forster, Kristin UNSPECIFIED UNSPECIFIED UNSPECIFIED Luengen, Markus UNSPECIFIED UNSPECIFIED UNSPECIFIED Niecke, Alexander UNSPECIFIED UNSPECIFIED UNSPECIFIED Pfaff, Holger UNSPECIFIED orcid.org/0000-0001-9154-6575 UNSPECIFIED Peters, Klaus M. UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-147448
DOI:	10.1024/1012-5302/a000670
Journal or Publication Title:	Pflege
Volume:	32
Number:	3
Page Range:	S. 137 - 146
Date:	2019
Publisher:	VERLAG HANS HUBER
Place of Publication:	BERN 9
ISSN:	1664-283X
Language:	German
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language Nursing Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/14744