Diekmann, Annika, Heuser, Christian ORCID: 0000-0001-9050-5800, Ernstmann, Nicole ORCID: 0000-0001-7685-6110, Geiser, Franziska, Gross, Sophie Elisabeth, Midding, Evamarie, Pfaff, Holger ORCID: 0000-0001-9154-6575 and Ansmann, Lena ORCID: 0000-0002-8628-7166 (2019). How do breast cancer patients experience multidisciplinary tumor conferences? - A description from the patient perspective. Breast, 44. S. 66 - 73. EDINBURGH: CHURCHILL LIVINGSTONE. ISSN 1532-3080

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Abstract

Objectives: Aim of this study was to investigate the experiences of breast cancer patients who participated in multidisciplinary tumor conferences (MTCs). Study design: Data from two consecutive years of an annual postal survey of patients with primary breast cancer were combined. Data was collected between February and July 2015 (response rate 72%) and 2016 (response rate 73%) from N= 8893 patients (ICD-10 C50) after hospital discharge from 86 breast cancer center hospitals in North Rhine-Westphalia, Germany. The study used a mixed-methods design. Standardized quantitative survey questions were analyzed descriptively and an open-ended question was analyzed using qualitative content analysis. Results: Around 9% of the patients were invited to participate in a multidisciplinary tumor conference (MTC) and 49% of the invited patients reported actual participation in a MTC. Approximately 87% of those patients did not regret their participation in the MTC. The qualitative analysis from the open-ended question indicated that MTC participation was perceived by patients as being both supportive and informative (n = 109 expressions). However, some patients reported difficult experiences and emotional reactions during and after participation (n =37 expressions). Altogether, the patients' perception was divided into positive and negative, cognitive and emotional experiences following participation in a MTC. Conclusion: The perception of the MTCs varies between the participating patients. Further research on advantages and disadvantages for patients and particularly on the feasibility from the provider's perspective is necessary. (C) 2019 The Authors. Published by Elsevier Ltd.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Diekmann, AnnikaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Heuser, ChristianUNSPECIFIEDorcid.org/0000-0001-9050-5800UNSPECIFIED
Ernstmann, NicoleUNSPECIFIEDorcid.org/0000-0001-7685-6110UNSPECIFIED
Geiser, FranziskaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Gross, Sophie ElisabethUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Midding, EvamarieUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Pfaff, HolgerUNSPECIFIEDorcid.org/0000-0001-9154-6575UNSPECIFIED
Ansmann, LenaUNSPECIFIEDorcid.org/0000-0002-8628-7166UNSPECIFIED
URN: urn:nbn:de:hbz:38-153166
DOI: 10.1016/j.breast.2018.12.012
Journal or Publication Title: Breast
Volume: 44
Page Range: S. 66 - 73
Date: 2019
Publisher: CHURCHILL LIVINGSTONE
Place of Publication: EDINBURGH
ISSN: 1532-3080
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
DECISION-MAKING; IMPACT; CARE; DEPRESSION; MANAGEMENT; PHYSICIANS; ANXIETY; SUPPORT; DISEASEMultiple languages
Oncology; Obstetrics & GynecologyMultiple languages
Refereed: Yes
URI: http://kups.ub.uni-koeln.de/id/eprint/15316

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