Universität zu Köln

Koerner, L. M., Brengmann, S., Peer, M., Duechting, C. and Weber, L. T. (2019). The Cologne Nephro-Playgroup. An offer for infants and toddlers with chronic kidney diseases and their parents. Mon.schr. Kinderheilkd., 167 (2). S. 131 - 138. NEW YORK: SPRINGER. ISSN 1433-0474

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Abstract

BackgroundAcongenital kidney disease is not only associated with immense restrictions for the affected child. Also the parents, who in many cases already know about the disease before birth, face difficult times which include frequent hospitalization, doctor's appointments, surgery, dialysis and finally transplantation. Important factors that are suited to positively influence cognitive and emotional adjustment of the parents with respect to the child's disease, are emotional support from other affected families, sufficient information about the disease as well as a trusting relationship with the medical team. With the objective of strengthening these factors and consequently contributing to the parents' empowerment, in 2015 the Pediatric Nephrology Unit of the University Hospital Cologne established the Nephro-Playgroup that aimed to give parents of infants and toddlers suffering from chronic kidney diseases the opportunity for exchanging experiences among each other as well as with the attendant hospital staff.MethodsFollowing aqualitative approach, eight mothers regularly attending the Nephro-Playgroup completed aquestionnaire containing eight open-ended questions about the playgroup.ResultsThe results indicated that the playgroup fulfills the intended objectives of providing the possibility of experiencing emotional support, to exchange experiences and to consult the hospital staff.ConclusionThe Nephro-Playgroup is an economically implementable offer for infants and toddlers with chronic kidney disease and their parents and it seems to be suitable to strengthen the parents' cognitive and emotional adjustment as well as their empowerment in relation to their child's disease.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Koerner, L. M. UNSPECIFIED UNSPECIFIED UNSPECIFIED Brengmann, S. UNSPECIFIED UNSPECIFIED UNSPECIFIED Peer, M. UNSPECIFIED UNSPECIFIED UNSPECIFIED Duechting, C. UNSPECIFIED UNSPECIFIED UNSPECIFIED Weber, L. T. UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-157889
DOI:	10.1007/s00112-017-0387-9
Journal or Publication Title:	Mon.schr. Kinderheilkd.
Volume:	167
Number:	2
Page Range:	S. 131 - 138
Date:	2019
Publisher:	SPRINGER
Place of Publication:	NEW YORK
ISSN:	1433-0474
Language:	German
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language CHILDREN; ADJUSTMENT; HEALTH; FAMILY; ADAPTATION; DISORDERS; MOTHERS Multiple languages Pediatrics Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/15788