Universität zu Köln

Strupp, Julia ORCID: 0000-0003-3135-2693, Hanke, Gloria, Schippel, Nicolas ORCID: 0000-0001-5612-8482, Pfaff, Holger ORCID: 0000-0001-9154-6575, Karbach, Ute ORCID: 0000-0003-3479-9474, Rietz, Christian ORCID: 0000-0002-7057-4937 and Voltz, Raymond ORCID: 0000-0002-4761-3395 (2018). Last Year of Life Study Cologne (LYOL-C): protocol for a cross-sectional mixed methods study to examine care trajectories and transitions in the last year of life until death. BMJ Open, 8 (4). LONDON: BMJ PUBLISHING GROUP. ISSN 2044-6055

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Abstract

Introduction The last year of life constitutes a particularly vulnerable phase for patients, involving nearly all health and social care structures. Yet, little scientific evidence is available that provides insight into the trajectories including the number and types of care setting transitions, transitions into palliative care and the dying phase. Only few studies have focused on difficulties associated with having to move between health and social care settings in the last year of life, although patients face a significant risk of adverse events. The Last Year of Life Study Cologne (LYOL-C) aims to fill this gap. Methods and analysis LYOL-C is a mixed-methods study composed of four steps: (1) Claims data collected by the statutory health insurance funds of deceased persons will be analysed with regard to patient care trajectories, health service transitions and costs in the last year of life. (2) Patient trajectories and transitions in healthcare will additionally be reconstructed by analysing the retrospective accounts of bereaved relatives (n=400) using a culturally adapted version of the Views of Informal Carers-Evaluation of Services Short Form questionnaire and the Patient Assessment of Care for Chronic Conditions Short Form questionnaire adapted for relatives. (3) Qualitative interviews with bereaved relatives (n=40-60) will provide in-depth insight into reasons for transitions and effects on patients' quality of life. (4) Focus groups (n=3-5) with Healthcare Professionals will be conducted to discuss challenges associated with transitions in the last year of life. Ethics and dissemination Ethical approval has been obtained from the Ethics Commission of the Faculty of Medicine of Cologne University (#17-188). Results will be submitted for publication in peer-reviewed journals and presented at national and international conferences.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Strupp, Julia UNSPECIFIED orcid.org/0000-0003-3135-2693 UNSPECIFIED Hanke, Gloria UNSPECIFIED UNSPECIFIED UNSPECIFIED Schippel, Nicolas nico.schippel@gmail.com orcid.org/0000-0001-5612-8482 UNSPECIFIED Pfaff, Holger UNSPECIFIED orcid.org/0000-0001-9154-6575 UNSPECIFIED Karbach, Ute UNSPECIFIED orcid.org/0000-0003-3479-9474 UNSPECIFIED Rietz, Christian UNSPECIFIED orcid.org/0000-0002-7057-4937 UNSPECIFIED Voltz, Raymond UNSPECIFIED orcid.org/0000-0002-4761-3395 UNSPECIFIED
URN:	urn:nbn:de:hbz:38-190463
DOI:	10.1136/bmjopen-2017-021211
Journal or Publication Title:	BMJ Open
Volume:	8
Number:	4
Date:	2018
Publisher:	BMJ PUBLISHING GROUP
Place of Publication:	LONDON
ISSN:	2044-6055
Language:	English
Faculty:	Faculty of Medicine
Divisions:	Faculty of Medicine > Sonstiges > Zentrum für Versorgungsforschung Köln
Subjects:	Medical sciences Medicine
Uncontrolled Keywords:	Keywords Language PALLIATIVE CARE; OF-LIFE; EPISODIC BREATHLESSNESS; MEDICARE PAYMENTS; AFTER-DISCHARGE; NEEDS; END; ILLNESS; TRENDS; CANCER Multiple languages Medicine, General & Internal Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/19046