Universität zu Köln

Groebe, Bernadette, Strupp, Julia, Eisenmann, Yvonne, Schmidt, Holger ORCID: 0000-0002-3151-7462, Eisenmann, Anna, Rietz, Christian ORCID: 0000-0002-7057-4937 and Voltz, Raymond ORCID: 0000-0002-4761-3395 (2018). Measuring attitudes towards the dying process: A systematic review of tools. Palliat. Med., 32 (4). S. 815 - 838. LONDON: SAGE PUBLICATIONS LTD. ISSN 1477-030X

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Abstract

Background: At the end of life, anxious attitudes concerning the dying process are common in patients in Palliative Care. Measurement tools can identify vulnerabilities, resources and the need for subsequent treatment to relieve suffering and support well-being. Aim: To systematically review available tools measuring attitudes towards dying, their operationalization, the method of measurement and the methodological quality including generalizability to different contexts. Design: Systematic review according to the PRISMA Statement. Methodological quality of tools assessed by standardized review criteria. Data sources: MEDLINE, PsycINFO, PsyndexTests and the Health and Psychosocial Instruments were searched from their inception to April 2017. Results: A total of 94 identified studies reported the development and/or validation of 44 tools. Of these, 37 were questionnaires and 7 alternative measurement methods (e.g. projective measures). In 34 of 37 questionnaires, the emotional evaluation (e.g. anxiety) towards dying is measured. Dying is operationalized in general items (n=20), in several specific aspects of dying (n=34) and as dying of others (n=14). Methodological quality of tools was reported inconsistently. Nine tools reported good internal consistency. Of 37 tools, 4 were validated in a clinical sample (e.g. terminal cancer; Huntington disease), indicating questionable generalizability to clinical contexts for most tools. Conclusion: Many tools exist to measure attitudes towards the dying process using different endpoints. This overview can serve as decision framework on which tool to apply in which contexts. For clinical application, only few tools were available. Further validation of existing tools and potential alternative methods in various populations is needed.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Groebe, Bernadette UNSPECIFIED UNSPECIFIED UNSPECIFIED Strupp, Julia UNSPECIFIED UNSPECIFIED UNSPECIFIED Eisenmann, Yvonne UNSPECIFIED UNSPECIFIED UNSPECIFIED Schmidt, Holger UNSPECIFIED orcid.org/0000-0002-3151-7462 UNSPECIFIED Eisenmann, Anna UNSPECIFIED UNSPECIFIED UNSPECIFIED Rietz, Christian UNSPECIFIED orcid.org/0000-0002-7057-4937 UNSPECIFIED Voltz, Raymond UNSPECIFIED orcid.org/0000-0002-4761-3395 UNSPECIFIED
URN:	urn:nbn:de:hbz:38-191233
DOI:	10.1177/0269216317748889
Journal or Publication Title:	Palliat. Med.
Volume:	32
Number:	4
Page Range:	S. 815 - 838
Date:	2018
Publisher:	SAGE PUBLICATIONS LTD
Place of Publication:	LONDON
ISSN:	1477-030X
Language:	English
Faculty:	Faculty of Medicine
Divisions:	Faculty of Medicine > Sonstiges > Zentrum für Versorgungsforschung Köln
Subjects:	Medical sciences Medicine
Uncontrolled Keywords:	Keywords Language COLLETT-LESTER FEAR; DEATH ANXIETY SCALE; MULTIDIMENSIONAL ORIENTATION; SPANISH FORM; PSYCHOMETRIC PROPERTIES; CONCURRENT VALIDITY; FACTORIAL STRUCTURE; CONSTRUCT-VALIDITY; SELF-REPORT; VALIDATION Multiple languages Health Care Sciences & Services; Public, Environmental & Occupational Health; Medicine, General & Internal Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/19123