Universität zu Köln

Holzinger, Dirk ORCID: 0000-0002-8062-8820, Foell, Dirk, Horneff, Gerd, Foeldvari, Ivan, Tzaribachev, Nikolay, Tzaribachev, Catrin, Minden, Kirsten, Kallinich, Tilmann, Ganser, Gerd, Clara, Lucia, Haas, Johannes-Peter, Huegle, Boris, Huppertz, Hans-Iko, Weller, Frank, Consolaro, Alessandro ORCID: 0000-0002-0065-7614, Bovis, Francesca and Ruperto, Nicolino ORCID: 0000-0001-8407-7782 (2018). The German version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR). Rheumatol. Int., 38. S. 211 - 219. HEIDELBERG: SPRINGER HEIDELBERG. ISSN 1437-160X

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Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the German language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. The participating centres were asked to collect demographic and clinical data along the JAMAR questionnaire in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 319 JIA patients (2.8% systemic, 36.7% oligoarticular, 23.5% RF negative polyarthritis, and 37% other categories) and 100 healthy children were enrolled in eight centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the German version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and in clinical research.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Holzinger, Dirk UNSPECIFIED orcid.org/0000-0002-8062-8820 UNSPECIFIED Foell, Dirk UNSPECIFIED UNSPECIFIED UNSPECIFIED Horneff, Gerd UNSPECIFIED UNSPECIFIED UNSPECIFIED Foeldvari, Ivan UNSPECIFIED UNSPECIFIED UNSPECIFIED Tzaribachev, Nikolay UNSPECIFIED UNSPECIFIED UNSPECIFIED Tzaribachev, Catrin UNSPECIFIED UNSPECIFIED UNSPECIFIED Minden, Kirsten UNSPECIFIED UNSPECIFIED UNSPECIFIED Kallinich, Tilmann UNSPECIFIED UNSPECIFIED UNSPECIFIED Ganser, Gerd UNSPECIFIED UNSPECIFIED UNSPECIFIED Clara, Lucia UNSPECIFIED UNSPECIFIED UNSPECIFIED Haas, Johannes-Peter UNSPECIFIED UNSPECIFIED UNSPECIFIED Huegle, Boris UNSPECIFIED UNSPECIFIED UNSPECIFIED Huppertz, Hans-Iko UNSPECIFIED UNSPECIFIED UNSPECIFIED Weller, Frank UNSPECIFIED UNSPECIFIED UNSPECIFIED Consolaro, Alessandro UNSPECIFIED orcid.org/0000-0002-0065-7614 UNSPECIFIED Bovis, Francesca UNSPECIFIED UNSPECIFIED UNSPECIFIED Ruperto, Nicolino UNSPECIFIED orcid.org/0000-0001-8407-7782 UNSPECIFIED
URN:	urn:nbn:de:hbz:38-191267
DOI:	10.1007/s00296-018-3953-0
Journal or Publication Title:	Rheumatol. Int.
Volume:	38
Page Range:	S. 211 - 219
Date:	2018
Publisher:	SPRINGER HEIDELBERG
Place of Publication:	HEIDELBERG
ISSN:	1437-160X
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language ASSESSMENT QUESTIONNAIRE CHAQ; CROSS-CULTURAL ADAPTATION; IDIOPATHIC ARTHRITIS; VALIDATION; PARENT; CHQ Multiple languages Rheumatology Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/19126