Universität zu Köln

Linde, P., Hanke, G., Voltz, R. and Simon, S. T. (2018). Unpredictable episodic breathlessness in patients with advanced chronic obstructive pulmonary disease and lung cancer: a qualitative study. Support. Care Cancer, 26 (4). S. 1097 - 1105. NEW YORK: SPRINGER. ISSN 1433-7339

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Abstract

The internationally consented definition and categorization describe two categories of episodic breathlessness: predictable (with known triggers) and unpredictable. The link of known triggers only to predictable episodes can be read that unpredictable episodes have none known trigger. Our aim was to illuminate patients' experiences with episodes of unpredictable breathlessness, to collect descriptions of the episodes' impact on the patients' lives, and, in turn, the patients' individual coping strategies in this connection. Qualitative study using semi-structured in-depth interviews with patients suffering from unpredictable episodes of breathlessness and chronic obstructive pulmonary disease (COPD; Global Initiative for Obstructive Lung Disease III and IV) or lung cancer (all stages). Interviews were audio-recorded, transcribed verbatim, and analyzed using Framework Analysis. One hundred one patients were screened in a large university hospital; ten participants fulfilled the inclusion criteria and provided consent. The experienced episodes were evaluated as unpleasant and with higher intensity compared to predictable episodes. Non-pharmacological interventions were identified as useful coping strategies. Interestingly, although patients experienced the episodes in an unpredictable manner, a trigger could be detected retrospectively for the majority of cases (mostly emotions (especially panic) and, occasionally, physical exertion). Unpredictable episodes are less frequent than previously assumed. The unpredictability of unpredictable breathless episodes refers to the patients' experience that these episodes occur out-of-the-blue. However, a known trigger can be identified for the majority of unpredictable breathless episodes. These are therefore triggered as well. Further research needs to describe more possible triggers, to inquire the prevalence of unpredictable episodic breathlessness, and to develop effective management strategies.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Linde, P. UNSPECIFIED UNSPECIFIED UNSPECIFIED Hanke, G. UNSPECIFIED UNSPECIFIED UNSPECIFIED Voltz, R. UNSPECIFIED UNSPECIFIED UNSPECIFIED Simon, S. T. UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-192263
DOI:	10.1007/s00520-017-3928-9
Journal or Publication Title:	Support. Care Cancer
Volume:	26
Number:	4
Page Range:	S. 1097 - 1105
Date:	2018
Publisher:	SPRINGER
Place of Publication:	NEW YORK
ISSN:	1433-7339
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language MENTAL-DISORDERS; DYSPNEA; VALIDATION; INTERVIEWS; COPD Multiple languages Oncology; Health Care Sciences & Services; Rehabilitation Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/19226