Universität zu Köln

Niemitz, Mandy, Gunst, Diana C. M., Hoevels-Guerich, Hedwig H., Hofbeck, Michael, Kaulitz, Renate, Galm, Christoph, Berger, Felix ORCID: 0000-0001-7881-1557, Nagdyman, Nicole, Stiller, Brigitte, Borth-Bruhns, Thomas, Konzag, Ines, Balmer, Christian ORCID: 0000-0003-1358-3535 and Goldbeck, Lutz (2017). Predictors of health-related quality of life in children with chronic heart disease. Cardiol. Young, 27 (8). S. 1455 - 1465. CAMBRIDGE: CAMBRIDGE UNIV PRESS. ISSN 1467-1107

Full text not available from this repository.

Abstract

Objective: Chronic paediatric heart disease is often associated with residual symptoms, persisting functional restrictions, and late sequelae for psychosocial development. It is, therefore, increasingly important to evaluate the health-related quality of life of children and adolescents with chronic heart disease. The aim of this study was to determine medical and socio-demographic variables affecting health-related quality of life in school-aged children and adolescents with chronic heart disease. Patients and methods: The Pediatric Cardiac Quality of Life Inventory was administered to 375 children and adolescents and 386 parental caregivers. Medical information was obtained from the charts. The socio-demographic information was provided by the patients and caregivers. Results: Greater disease severity, low school attendance, current cardiac medication, current parental employment, uncertain or limited prognosis, history of connection to a heart-lung machine, number of nights spent in a hospital, and need for treatment in a paediatric aftercare clinic independently contributed to lower health-related quality of life (self-report: R-2 = 0.41; proxy-report: R-2 = 0.46). High correlations between self-reports and parent-proxy reports indicated concordance regarding the evaluation of a child's health-related quality of life. Conclusions: Beyond medical treatment, integration into school is important to increase health-related quality of life in children and adolescents surviving with chronic heart disease. Regular screening of health-related quality of life is recommended to identify patients with special needs.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Niemitz, Mandy UNSPECIFIED UNSPECIFIED UNSPECIFIED Gunst, Diana C. M. UNSPECIFIED UNSPECIFIED UNSPECIFIED Hoevels-Guerich, Hedwig H. UNSPECIFIED UNSPECIFIED UNSPECIFIED Hofbeck, Michael UNSPECIFIED UNSPECIFIED UNSPECIFIED Kaulitz, Renate UNSPECIFIED UNSPECIFIED UNSPECIFIED Galm, Christoph UNSPECIFIED UNSPECIFIED UNSPECIFIED Berger, Felix UNSPECIFIED orcid.org/0000-0001-7881-1557 UNSPECIFIED Nagdyman, Nicole UNSPECIFIED UNSPECIFIED UNSPECIFIED Stiller, Brigitte UNSPECIFIED UNSPECIFIED UNSPECIFIED Borth-Bruhns, Thomas UNSPECIFIED UNSPECIFIED UNSPECIFIED Konzag, Ines UNSPECIFIED UNSPECIFIED UNSPECIFIED Balmer, Christian UNSPECIFIED orcid.org/0000-0003-1358-3535 UNSPECIFIED Goldbeck, Lutz UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-214768
DOI:	10.1017/S1047951117000440
Journal or Publication Title:	Cardiol. Young
Volume:	27
Number:	8
Page Range:	S. 1455 - 1465
Date:	2017
Publisher:	CAMBRIDGE UNIV PRESS
Place of Publication:	CAMBRIDGE
ISSN:	1467-1107
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language CARDIAC-SURGERY; GREAT-ARTERIES; ILL PARENTS; ADOLESCENTS; TRANSPOSITION; FAMILIES; ADJUSTMENT; EXPERIENCE; MORBIDITY; INVENTORY Multiple languages Cardiac & Cardiovascular Systems; Pediatrics Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/21476