Universität zu Köln

Golla, Heidrun, Galushko, Maren, Strupp, Julia, Karbach, Ute, Pfaff, Holger ORCID: 0000-0001-9154-6575, Ostgathe, Christoph ORCID: 0000-0003-4449-5036 and Voltz, Raymond (2016). Patients Feeling Severely Affected by Multiple Sclerosis: Addressing Death and Dying. Omega-J. Death Dying, 74 (2). S. 275 - 292. THOUSAND OAKS: SAGE PUBLICATIONS INC. ISSN 1541-3764

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Abstract

Eleven months after being interviewed in a study on unmet needs of severely affected multiple sclerosis patients, one participant died by assisted suicide. We reanalyzed the data to find out if our 15 study patients might have brought up the topic of death and dying during episodic interviews that had not primarily addressed this issue. Secondary analysis with regard to the thematic field of death and dying revealed that patients unsolicited brought up this issue within the following categories: Passing over death and dying, Death is not relevant to me, We want to keep up the life challenge, Death as an option, and Wish to have the opportunity to address end of life issues. We conclude that the topic of death and dying is of importance to these patients, as they spontaneously mentioned it in multiple varieties. Health professionals should individually acknowledge patients' needs to address death and dying.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Golla, Heidrun UNSPECIFIED UNSPECIFIED UNSPECIFIED Galushko, Maren UNSPECIFIED UNSPECIFIED UNSPECIFIED Strupp, Julia UNSPECIFIED UNSPECIFIED UNSPECIFIED Karbach, Ute UNSPECIFIED UNSPECIFIED UNSPECIFIED Pfaff, Holger UNSPECIFIED orcid.org/0000-0001-9154-6575 UNSPECIFIED Ostgathe, Christoph UNSPECIFIED orcid.org/0000-0003-4449-5036 UNSPECIFIED Voltz, Raymond UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-255250
DOI:	10.1177/0030222815598443
Journal or Publication Title:	Omega-J. Death Dying
Volume:	74
Number:	2
Page Range:	S. 275 - 292
Date:	2016
Publisher:	SAGE PUBLICATIONS INC
Place of Publication:	THOUSAND OAKS
ISSN:	1541-3764
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language PALLIATIVE CARE; HEALTH-PROFESSIONALS; DANISH PATIENTS; UNMET NEEDS; SUICIDE; RECOMMENDATIONS; SERVICE; ISSUES; LIFE; END Multiple languages Psychology, Multidisciplinary; Social Sciences, Biomedical Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/25525