Universität zu Köln

Oliver, D. J., Borasio, G. D., Caraceni, A., de Visser, M., Grisold, W., Lorenzl, S., Veronese, S. and Voltz, R. (2016). A consensus review on the development of palliative care for patients with chronic and progressive neurological disease. Eur. J. Neurol., 23 (1). S. 30 - 39. HOBOKEN: WILEY. ISSN 1468-1331

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Abstract

Background and purpose: The European Association of Palliative Care Taskforce, in collaboration with the Scientific Panel on Palliative Care in Neurology of the European Federation of Neurological Societies (now the European Academy of Neurology), aimed to undertake a review of the literature to establish an evidence-based consensus for palliative and end of life care for patients with progressive neurological disease, and their families. Methods: A search of the literature yielded 942 articles on this area. These were reviewed by two investigators to determine the main areas and the subsections. A draft list of papers supporting the evidence for each area was circulated to the other authors in an iterative process leading to the agreed recommendations. Results: Overall there is limited evidence to support the recommendations but there is increasing evidence that palliative care and a multidisciplinary approach to care do lead to improved symptoms (Level B) and quality of life of patients and their families (Level C). The main areas in which consensus was found and recommendations could be made are in the early integration of palliative care (Level C), involvement of the wider multidisciplinary team (Level B), communication with patients and families including advance care planning (Level C), symptom management (Level B), end of life care (Level C), carer support and training (Level C), and education for all professionals involved in the care of these patients and families (Good Practice Point). Conclusions: The care of patients with progressive neurological disease and their families continues to improve and develop. There is a pressing need for increased collaboration between neurology and palliative care.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Oliver, D. J. UNSPECIFIED UNSPECIFIED UNSPECIFIED Borasio, G. D. UNSPECIFIED UNSPECIFIED UNSPECIFIED Caraceni, A. UNSPECIFIED UNSPECIFIED UNSPECIFIED de Visser, M. UNSPECIFIED UNSPECIFIED UNSPECIFIED Grisold, W. UNSPECIFIED UNSPECIFIED UNSPECIFIED Lorenzl, S. UNSPECIFIED UNSPECIFIED UNSPECIFIED Veronese, S. UNSPECIFIED UNSPECIFIED UNSPECIFIED Voltz, R. UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-292646
DOI:	10.1111/ene.12889
Journal or Publication Title:	Eur. J. Neurol.
Volume:	23
Number:	1
Page Range:	S. 30 - 39
Date:	2016
Publisher:	WILEY
Place of Publication:	HOBOKEN
ISSN:	1468-1331
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language AMYOTROPHIC-LATERAL-SCLEROSIS; PHYSICIAN-ASSISTED SUICIDE; MOTOR-NEURON DISEASE; QUALITY-OF-LIFE; PARKINSONS-DISEASE; COMMUNICATION-SKILLS; MULTIPLE-SCLEROSIS; BRAIN-TUMORS; MANAGEMENT; ATTITUDES Multiple languages Clinical Neurology; Neurosciences Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/29264