Universität zu Köln

Zambrano, Sofia C., Haugen, Dagny Faksvag, van der Heide, Agnes, Tripodoro, Vilma A., Ellershaw, John, Furst, Carl Johan, Voltz, Raymond, Mason, Stephen, Daud, Maria L., De Simone, Gustavo, Kremeike, Kerstin, Halfdanardottir, Svandis Iris, Sigurdardottir, Valgerdur, Johnson, Jeremy, Allan, Simon, Hafeez, Haroon, Simoes, Catarina, Sigurdardottir, Katrin Ruth, Rasmussen, Birgit H., Williamson, Paula and Eychmuller, Steffen (2020). Development of an international Core Outcome Set (COS) for best care for the dying person: study protocol. BMC Palliat. Care, 19 (1). LONDON: BMC. ISSN 1472-684X

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Abstract

BackgroundIn contrast to typical measures employed to assess outcomes in healthcare such as mortality or recovery rates, it is difficult to define which specific outcomes of care are the most important in caring for dying individuals. Despite a variety of tools employed to assess different dimensions of palliative care, there is no consensus on a set of core outcomes to be measured in the last days of life.In order to optimise decision making in clinical practice and comparability of interventional studies, we aim to identify and propose a set of core outcomes for the care of the dying person.MethodsFollowing the COMET initiative approach, the proposed study will proceed through four stages to develop a set of core outcomes: In stage 1, a systematic review of the literature will identify outcomes measured in existing peer reviewed literature, as well as outcomes derived through qualitative studies. Grey literature, will also be included. Stage 2 will allow for the identification and determination of patient and proxy defined outcomes of care at the end of life via quantitative and qualitative methods at an international level. In stage 3, from a list of salient outcomes identified through stages 1 and 2, international experts, family members, patients, and patient advocates will be asked to score the importance of the preselected outcomes through a Delphi process. Stage 4 consists of a face-to-face consensus meeting of international experts and patient/family representatives in order to define, endorse, and propose the final Core Outcomes Set.DiscussionCore Outcome Sets aim at promoting uniform assessment of care outcomes in clinical practice as well as research. If consistently employed, a robust set of core outcomes for the end of life, and specifically for the dying phase, defined by relevant stakeholders, can ultimately be translated into best care for the dying person. Patient care will be improved by allowing clinicians to choose effective and meaningful treatments, and research impact will be improved by employing internationally agreed clinically relevant endpoints and enabling accurate comparison between studies in systematic reviews and/or in meta-analyses.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Zambrano, Sofia C. UNSPECIFIED UNSPECIFIED UNSPECIFIED Haugen, Dagny Faksvag UNSPECIFIED UNSPECIFIED UNSPECIFIED van der Heide, Agnes UNSPECIFIED UNSPECIFIED UNSPECIFIED Tripodoro, Vilma A. UNSPECIFIED UNSPECIFIED UNSPECIFIED Ellershaw, John UNSPECIFIED UNSPECIFIED UNSPECIFIED Furst, Carl Johan UNSPECIFIED UNSPECIFIED UNSPECIFIED Voltz, Raymond UNSPECIFIED UNSPECIFIED UNSPECIFIED Mason, Stephen UNSPECIFIED UNSPECIFIED UNSPECIFIED Daud, Maria L. UNSPECIFIED UNSPECIFIED UNSPECIFIED De Simone, Gustavo UNSPECIFIED UNSPECIFIED UNSPECIFIED Kremeike, Kerstin UNSPECIFIED UNSPECIFIED UNSPECIFIED Halfdanardottir, Svandis Iris UNSPECIFIED UNSPECIFIED UNSPECIFIED Sigurdardottir, Valgerdur UNSPECIFIED UNSPECIFIED UNSPECIFIED Johnson, Jeremy UNSPECIFIED UNSPECIFIED UNSPECIFIED Allan, Simon UNSPECIFIED UNSPECIFIED UNSPECIFIED Hafeez, Haroon UNSPECIFIED UNSPECIFIED UNSPECIFIED Simoes, Catarina UNSPECIFIED UNSPECIFIED UNSPECIFIED Sigurdardottir, Katrin Ruth UNSPECIFIED UNSPECIFIED UNSPECIFIED Rasmussen, Birgit H. UNSPECIFIED UNSPECIFIED UNSPECIFIED Williamson, Paula UNSPECIFIED UNSPECIFIED UNSPECIFIED Eychmuller, Steffen UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-307337
DOI:	10.1186/s12904-020-00654-6
Journal or Publication Title:	BMC Palliat. Care
Volume:	19
Number:	1
Date:	2020
Publisher:	BMC
Place of Publication:	LONDON
ISSN:	1472-684X
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language OF-LIFE CARE; PALLIATIVE CARE; QUALITY INDICATORS; DEFINITIONS; END; TRIALS; UPDATE Multiple languages Health Care Sciences & Services; Health Policy & Services Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/30733