Universität zu Köln

Tennigkeit, Jenny, Feige, Tim, Haak, Maria, Hellqvist, Carina ORCID: 0000-0001-9212-8877, Seven, Uemran S., Kalbe, Elke, Schwarz, Jaqueline, Warnecke, Tobias ORCID: 0000-0001-8979-5900, Toenges, Lars, Eggers, Carsten and Loewenbrueck, Kai F. (2020). Structured Care and Self-Management Education for Persons with Parkinson's Disease: Why the First Does Not Go without the Second-Systematic Review, Experiences and Implementation Concepts from Sweden and Germany. J. Clin. Med., 9 (9). BASEL: MDPI. ISSN 2077-0383

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Abstract

Integrated care is regarded as a key for care delivery to persons with chronic long-term conditions such as Parkinson's disease. For persons with Parkinson's disease, obtaining self-management support is a top priority in the context of integrated care. Self-management is regarded as a crucial competence in chronic diseases since the affected persons and their caregivers inevitably take up the main responsibility when it comes to day-to-day management. Formal self-management education programs with the focus on behavioral skills relevant to the induction and maintenance of behavioral change have been implemented as a standard in many chronic long-term conditions. However, besides the example of the Swedish National Parkinson School, the offers for persons with Parkinson's disease remain fragmented and limited in availability. Today, no such program is implemented as a nationwide standard in Germany. This paper provides (1) a systematic review on structured self-management education programs specifically designed or adopted for persons with Parkinson's disease, (2) presents the Swedish National Parkinson School as an example for a successfully implemented nationwide program and (3) presents a concept for the design, evaluation and long-term implementation of a future-orientated self-management education program for persons with Parkinson's disease in Germany.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Tennigkeit, Jenny UNSPECIFIED UNSPECIFIED UNSPECIFIED Feige, Tim UNSPECIFIED UNSPECIFIED UNSPECIFIED Haak, Maria UNSPECIFIED UNSPECIFIED UNSPECIFIED Hellqvist, Carina UNSPECIFIED orcid.org/0000-0001-9212-8877 UNSPECIFIED Seven, Uemran S. UNSPECIFIED UNSPECIFIED UNSPECIFIED Kalbe, Elke UNSPECIFIED UNSPECIFIED UNSPECIFIED Schwarz, Jaqueline UNSPECIFIED UNSPECIFIED UNSPECIFIED Warnecke, Tobias UNSPECIFIED orcid.org/0000-0001-8979-5900 UNSPECIFIED Toenges, Lars UNSPECIFIED UNSPECIFIED UNSPECIFIED Eggers, Carsten UNSPECIFIED UNSPECIFIED UNSPECIFIED Loewenbrueck, Kai F. UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-320365
DOI:	10.3390/jcm9092787
Journal or Publication Title:	J. Clin. Med.
Volume:	9
Number:	9
Date:	2020
Publisher:	MDPI
Place of Publication:	BASEL
ISSN:	2077-0383
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language QUALITY-OF-LIFE; EFFICACY-ENHANCING INTERVENTIONS; CHRONIC DISABILITY IMPLICATIONS; IMPROVING PRIMARY-CARE; PATIENT EDUCATION; STANDARDIZED PROGRAM; FORMATIVE EVALUATION; INTEGRATED CARE; HEALTH-STATUS; PEOPLE Multiple languages Medicine, General & Internal Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/32036