Stock, Stephanie, Altin, Sibel, Palmowski, Stefan, Berger, Bettina ORCID: 0000-0003-4999-8898 and Passon, Anna (2015). Patients' advocates and counselors: Perceived needs in education and training. Patient Educ. Couns., 98 (11). S. 1431 - 1439. CLARE: ELSEVIER IRELAND LTD. ISSN 0738-3991

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Abstract

Objective: Since there is a lack of knowledge on the occupational needs of patient representatives (PRs) and counselors (PCs), we performed a study eliciting perceived skills and informational needs in evidence-based medicine (EbM) and health economics (HE) and investigated preferences for training. Methods: Semi-structured interviews and an online survey were conducted among PRs and PCs in Germany. Questions covered perceived skills and informational needs in EbM and HE and preferences for training in both fields. Interview data was analyzed using the grounded theory method. Survey results were analyzed by means of descriptive statistics. Results: Nine personal interviews, one group discussion and 50 survey forms were analyzed. Respondents reported better skills in EbM compared to HE but felt a need for training in both fields. Important barriers mentioned were difficulties in reading scientific articles written in English and understanding statistics. Preferences for training included regionally widespread offers, availability of refresher classes, and a mixture of presence-based and online courses. Conclusion: PRs and PCs perceive a considerable need for formal training in EbM and HE and have clear expectations of the format and design. Practice implication: Trainings in EbM and HE could help to enhance patient and public involvement (PPI) in Germany. (C) 2015 Elsevier Ireland Ltd. All rights reserved.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Stock, StephanieUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Altin, SibelUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Palmowski, StefanUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Berger, BettinaUNSPECIFIEDorcid.org/0000-0003-4999-8898UNSPECIFIED
Passon, AnnaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-387538
DOI: 10.1016/j.pec.2015.06.014
Journal or Publication Title: Patient Educ. Couns.
Volume: 98
Number: 11
Page Range: S. 1431 - 1439
Date: 2015
Publisher: ELSEVIER IRELAND LTD
Place of Publication: CLARE
ISSN: 0738-3991
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
EVIDENCE-BASED MEDICINE; DECISION-MAKING; CONSUMER REPRESENTATIVES; HEALTH-CARE; PARTICIPATION; LITERACY; GERMANY; IMPACTMultiple languages
Public, Environmental & Occupational Health; Social Sciences, InterdisciplinaryMultiple languages
URI: http://kups.ub.uni-koeln.de/id/eprint/38753

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