Universität zu Köln

Dunger, Christine, Higginson, Irene J., Gysels, Marjolein, Booth, Sara ORCID: 0000-0003-2996-4578, Simon, Steffen T. and Bausewein, Claudia ORCID: 0000-0002-0958-3041 (2015). Breathlessness and crises in the context of advanced illness: A comparison between COPD and lung cancer patients. Palliat. Support Care, 13 (2). S. 229 - 238. NEW YORK: CAMBRIDGE UNIV PRESS. ISSN 1478-9523

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Abstract

Objective: The objective of this study was to explore and contrast the experience and meaning of breathlessness in patients with chronic obstructive pulmonary disease (COPD) or lung cancer at the end of life. Method: We conducted a qualitative study embedded in a longitudinal study using topic-guided in-depth interviews with a purposive sample of patients suffering from breathlessness affecting their daily activities due to advanced (primary or secondary) lung cancer or COPD stage III/IV. All interviews were audiotaped, transcribed verbatim, and analyzed using framework analysis. Results: Ten COPD and eight lung cancer patients were interviewed. Both groups reported similarities in their experience. These included exertion through breathlessness throughout the illness course, losses in their daily activities, and the experience of breathlessness leading to crises. The main difference was the way in which patients adapted to their particular illness experience and the resulting crises over time. While COPD patients more likely sought to get their life with breathlessness under control, speaking of daily living with breathlessness under certain conditions, the participating lung cancer patients often faced the possibility of death and expressed a need for security. Significance of Results: Breathlessness leads to crises in patients with advanced disease. Although experiences of patients are similar, reactions and coping mechanisms vary and are more related to the disease and the stage of disease.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Dunger, Christine UNSPECIFIED UNSPECIFIED UNSPECIFIED Higginson, Irene J. UNSPECIFIED UNSPECIFIED UNSPECIFIED Gysels, Marjolein UNSPECIFIED UNSPECIFIED UNSPECIFIED Booth, Sara UNSPECIFIED orcid.org/0000-0003-2996-4578 UNSPECIFIED Simon, Steffen T. UNSPECIFIED UNSPECIFIED UNSPECIFIED Bausewein, Claudia UNSPECIFIED orcid.org/0000-0002-0958-3041 UNSPECIFIED
URN:	urn:nbn:de:hbz:38-409327
DOI:	10.1017/S147895151300120X
Journal or Publication Title:	Palliat. Support Care
Volume:	13
Number:	2
Page Range:	S. 229 - 238
Date:	2015
Publisher:	CAMBRIDGE UNIV PRESS
Place of Publication:	NEW YORK
ISSN:	1478-9523
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language OBSTRUCTIVE PULMONARY-DISEASE; PALLIATIVE CARE; HEALTH-CARE; EXPERIENCE; SYMPTOMS; QUALITY Multiple languages Health Policy & Services Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/40932