Universität zu Köln

Perrar, Klaus Maria, Schmidt, Holger, Eisenmann, Yvonne, Cremer, Bernadette and Voltz, Raymond (2015). Needs of People with Severe Dementia at the End-of-Life: A Systematic Review. J. Alzheimers Dis., 43 (2). S. 397 - 414. AMSTERDAM: IOS PRESS. ISSN 1875-8908

Full text not available from this repository.

Abstract

Background: Epidemiological data shows an increasing number of people affected by dementia. It is mentioned that people with severe dementia have special care needs which are intensified at the end-of-life. Objective: This paper offers a systematic analysis of the current status of research on the needs of people with severe dementia in the last phase of their lives. Methods: A systematic review of the MEDLINE, CINAHL, Cochrane Library, PsycINFO, and AMED databases performed up to April 2014 was further expanded by contacting experts, conducting internet searches, and screening relevant reference lists. Studies were screened according to defined criteria and appraised for methodological quality. Findings were then synthesized using a narrative thematic approach to identify and categorize relevant needs into thematic categories and subcategories. Results: A total of ten studies published from 1993-2013 were identified, encompassing qualitative (n = 7), quantitative (n = 2), and a mixed-methods study (n = 1). Data synthesis yielded seven themes, with physical, social, and psychological needs the categories most frequently mentioned. Other categories were spiritual, supportive, and environmental needs and needs related to individuality. Needs were often named, but what they entailed operationally was not highlighted in detail. Conclusion: This systematic review shows the paucity of empirical findings on the needs of people with severe dementia. The structured presentation of thematic categories points to a clearer delineation of these needs. Thus, this overview emphasizes the topics for future research and can likewise serve as an orientation for care provision.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Perrar, Klaus Maria UNSPECIFIED UNSPECIFIED UNSPECIFIED Schmidt, Holger UNSPECIFIED UNSPECIFIED UNSPECIFIED Eisenmann, Yvonne UNSPECIFIED UNSPECIFIED UNSPECIFIED Cremer, Bernadette UNSPECIFIED UNSPECIFIED UNSPECIFIED Voltz, Raymond UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-419852
DOI:	10.3233/JAD-140435
Journal or Publication Title:	J. Alzheimers Dis.
Volume:	43
Number:	2
Page Range:	S. 397 - 414
Date:	2015
Publisher:	IOS PRESS
Place of Publication:	AMSTERDAM
ISSN:	1875-8908
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language OLDER-PEOPLE; PALLIATIVE CARE; RECOMMENDATIONS; HOME Multiple languages Neurosciences Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/41985