Universität zu Köln

Simon, S. T., Weingaertner, V., Voltz, R. and Bausewein, C. (2014). Episodic breathlessness: Translation and consenting of the international definition using the Delphi method. Dtsch. Med. Wochenschr., 139 (42). S. 2127 - 2132. STUTTGART: GEORG THIEME VERLAG KG. ISSN 1439-4413

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Abstract

Background: Similar to pain, refractory breathlessness can occur episodically. Episodic Breathlessness is a distressing symptom in patients with advanced life-limiting disease. The lack of a universal definition impedes symptom understanding in clinical practice and effective management, respectively. The aim of the study was to formally consent a German translation of the English definition and terminology of episodic breathlessness. Methods: A web-based Delphi survey was conducted with German breathlessness experts (breathlessness working group of Germany's National Guideline (S3) for Palliative Care). Drafts of German-language definitions und terminology were assessed using structured questionnaires by binary rating or rankings, respectively. Optional comments were analysed by content analysis. Consensus was defined by >= 70 % agreement among participants. Results: In two resulting Delphi-rounds 8/16 (50 %) und 11/16 (69 %) experts, 30-59 years of age, 50 %/55 % female, participated. After the second round, consensus was reached for the symptom's description Atemnotattacke (73 %) and a German-language definition (90 %). The terms vorhersehbar vs. unvorhersehbar were directly consented for the categorization (88 %). Conclusion: The formally consented German definition and terminology of episodic breathlessness enable clearer symptom understanding and provide a precise basis for education and research on the symptom and its management also in Germany. Effective management options are warranted to improve quality of life of suffering patients and their relatives.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Simon, S. T. UNSPECIFIED UNSPECIFIED UNSPECIFIED Weingaertner, V. UNSPECIFIED UNSPECIFIED UNSPECIFIED Voltz, R. UNSPECIFIED UNSPECIFIED UNSPECIFIED Bausewein, C. UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-427249
DOI:	10.1055/s-0034-1387295
Journal or Publication Title:	Dtsch. Med. Wochenschr.
Volume:	139
Number:	42
Page Range:	S. 2127 - 2132
Date:	2014
Publisher:	GEORG THIEME VERLAG KG
Place of Publication:	STUTTGART
ISSN:	1439-4413
Language:	German
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language BREAKTHROUGH PAIN; MANAGEMENT; CONSENSUS; FENTANYL; DYSPNEA; BREATH Multiple languages Medicine, General & Internal Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/42724