Universität zu Köln

Krones, Tanja ORCID: 0000-0001-9880-0564, Koerner, Uwe, Schmitz, Dagmar, Henn, Wolfram, Wewetzer, Christa, Kress, Hartmut, Netzer, Christian, Thorn, Petra and Bockenheimer-Lucius, Gisela (2014). Is the prohibition of prenatal diagnosis of late-onset diseases in the German Genetic Diagnosis Act medically, legally and ethically justified? Ethik Med., 26 (1). S. 33 - 47. NEW YORK: SPRINGER. ISSN 1437-1618

Full text not available from this repository.

Abstract

Definition of the problem The German Genetic Diagnosis Act (Genetic Diagnosis Act, GenDG) became effective on February 1, 2010. Although this act was welcomed by many, the debate surrounding some regulatory areas, for example, screening newborns, continues. One aspect of this new legislation, however, has received little attention: the prohibition of prenatal diagnosis of so-called late-onset diseases-where first symptoms only develop after completion of the 18th year of life-constitutes an internationally unique prohibition. In this publication, we would like to contribute to a more differentiated discussion of A A 15(2) GenDG that sanctions this diagnosis. Arguments and conclusion There are arguments supporting this prohibition (especially the right of the child not to know). However, based on medical concerns as well as an analysis of ethical and legal pros and cons, we conclude that maintaining this general prohibition of diagnosing late-onset diseases might be insufficient as well as inconsistent with other regulations; thus, possible alternatives are discussed.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Krones, Tanja UNSPECIFIED orcid.org/0000-0001-9880-0564 UNSPECIFIED Koerner, Uwe UNSPECIFIED UNSPECIFIED UNSPECIFIED Schmitz, Dagmar UNSPECIFIED UNSPECIFIED UNSPECIFIED Henn, Wolfram UNSPECIFIED UNSPECIFIED UNSPECIFIED Wewetzer, Christa UNSPECIFIED UNSPECIFIED UNSPECIFIED Kress, Hartmut UNSPECIFIED UNSPECIFIED UNSPECIFIED Netzer, Christian UNSPECIFIED UNSPECIFIED UNSPECIFIED Thorn, Petra UNSPECIFIED UNSPECIFIED UNSPECIFIED Bockenheimer-Lucius, Gisela UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-444686
DOI:	10.1007/s00481-012-0240-6
Journal or Publication Title:	Ethik Med.
Volume:	26
Number:	1
Page Range:	S. 33 - 47
Date:	2014
Publisher:	SPRINGER
Place of Publication:	NEW YORK
ISSN:	1437-1618
Language:	German
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language ADOLESCENTS; CHILDREN Multiple languages Medical Ethics Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/44468