Schoenmaker, Nikki J., Haverman, Lotte, Tromp, Wilma F., van der Lee, Johanna H., Offringa, Martin ORCID: 0000-0002-4402-5299, Adams, Brigitte, Bouts, Antonia H. M., Collard, Laure, Cransberg, Karlien, van Dyck, Maria, Godefroid, Nathalie, van Hoeck, Koenraad, Koster-Kamphuis, Linda ORCID: 0000-0002-9971-995X, Lilien, Marc R., Raes, Ann, Taylan, Christina, Grootenhuis, Martha A. and Groothoff, Jaap W. (2014). Children of non-Western origin with end-stage renal disease in the Netherlands, Belgium and a part of Germany have impaired health-related quality of life compared with Western children. Nephrol. Dial. Transplant., 29 (2). S. 448 - 459. OXFORD: OXFORD UNIV PRESS. ISSN 1460-2385

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Abstract

Background. Many children with end-stage renal disease (ESRD) living in Western Europe are of non-Western European origin. They have unfavourable somatic outcomes compared with ESRD children of Western origin. In this study, we compared the Health-related Quality of Life (HRQoL) of both groups. Methods. All children (5-18 years) with ESRD included in the RICH-Q project (Renal Insufficiency therapy in Children-Quality assessment and improvement) or their parents were asked to complete the generic version of the Paediatric Quality-of-Life Inventory 4.0 (PedsQL). RICH-Q comprises the Netherlands, Belgium and a part of Germany. Children were considered to be of non-Western origin if they or at least one parent was born outside Western-European countries. Impaired HRQoL for children with ESRD of Western or non-Western origin was defined as a PedsQL score less than fifth percentile for healthy Dutch children of Western or non-Western origin, respectively. Results. Of the 259 eligible children, 230 agreed to participate. One hundred and seventy-four children responded (response rate 67%) and 55 (32%) were of non-Western origin. Overall, 31 (56%) of the ESRD children of non-Western origin, and 58 (49%) of Western origin had an impaired total HRQoL score. Total HRQoL scores of children with ESRD of Western origin and non-Western origin were comparable, but scores on emotional functioning and school functioning were lower in non-Western origin (P = 0.004 and 0.01, respectively). The adjusted odds ratios (95% confidence interval) for ESRD children of non-Western origin to have impaired emotional functioning and school functioning, compared with Western origin, were 3.3(1.5-7.1) and 2.2(1.1-4.2), respectively. Conclusion. Children with ESRD of non-Western origin in three Western countries were found to be at risk for impaired HRQoL on emotional and school functioning. These children warrant special attention.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Schoenmaker, Nikki J.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Haverman, LotteUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Tromp, Wilma F.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
van der Lee, Johanna H.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Offringa, MartinUNSPECIFIEDorcid.org/0000-0002-4402-5299UNSPECIFIED
Adams, BrigitteUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Bouts, Antonia H. M.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Collard, LaureUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Cransberg, KarlienUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
van Dyck, MariaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Godefroid, NathalieUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
van Hoeck, KoenraadUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Koster-Kamphuis, LindaUNSPECIFIEDorcid.org/0000-0002-9971-995XUNSPECIFIED
Lilien, Marc R.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Raes, AnnUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Taylan, ChristinaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Grootenhuis, Martha A.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Groothoff, Jaap W.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-447033
DOI: 10.1093/ndt/gft436
Journal or Publication Title: Nephrol. Dial. Transplant.
Volume: 29
Number: 2
Page Range: S. 448 - 459
Date: 2014
Publisher: OXFORD UNIV PRESS
Place of Publication: OXFORD
ISSN: 1460-2385
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
PSYCHOSOCIAL ADJUSTMENT; SOCIOECONOMIC-FACTORS; DIALYSIS TREATMENT; IMMIGRANTS; OUTCOMES; DUTCH; ADOLESCENTS; PEDSQL; ESRD; CAREMultiple languages
Transplantation; Urology & NephrologyMultiple languages
URI: http://kups.ub.uni-koeln.de/id/eprint/44703

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