Valent, Peter ORCID: 0000-0003-0456-5095, Arock, Michel, Bonadonna, Patrizia, Brockow, Knut, Broesby-Olsen, Sigurd, Escribano, Luis, Gleixner, Karoline V., Grattan, Clive, Hadzijusufovic, Emir ORCID: 0000-0001-7409-4204, Hagglund, Hans, Hermine, Olivier ORCID: 0000-0003-2574-3874, Horny, Hans-Peter, Kluin-Nelemans, Hanneke C., Maurer, Marcus ORCID: 0000-0002-4121-481X, Niedoszytko, Marek ORCID: 0000-0003-1089-1911, Nedoszytko, Boguslaw, Nilsson, Gunnar ORCID: 0000-0001-6795-5512, Oude-Elberink, Hanneke N. G., Orfao, Alberto, Radia, Deepti, Reiter, Andreas, Siebenhaar, Frank ORCID: 0000-0003-4532-1644, Sotlar, Karl, Sperr, Wolfgang R., Triggiani, Massimo ORCID: 0000-0001-7318-2093, VanDoormaal, Jaap J., Varkonyi, Judit, Yavuz, Selim and Hartmann, Karin ORCID: 0000-0002-4595-8226 (2012). European Competence Network on Mastocytosis (ECNM): 10-year jubilee, update, and future perspectives. Wien. Klin. Wochen., 124 (23-24). S. 807 - 815. WIEN: SPRINGER WIEN. ISSN 1613-7671

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Abstract

The European Competence Network on Mastocytosis (ECNM) was initiated in 2002 as a multidisciplinary and multinational cooperative approach to increase awareness and to improve diagnosis and therapy of mastocytosis. The network is composed of local centers, physicians, and scientists who have dedicated their work to patients with mastocytosis. A strategic goal of the ECNM is to provide the best available information about the disease to patients and physicians. During the past 10 years, the ECNM has expanded to various countries and contributed successfully to the development of markers, definitions, and standards in the field of mastocytosis. Members of the ECNM organized Annual Meetings in Europe and two Working Conferences on Mastocytosis in Vienna (in 2005 and 2010), and initiated and supported several preclinical and clinical trials. In all these activities, representatives of the ECNM cooperate closely with their US colleagues, with patient-organizations in Europe and in the USA, and with other scientific networks. The ECNM also launched a mastocytosis registry that has been activated in 2012. Using the central database of this registry, cooperative multicenter studies, which should include sufficient numbers of patients and robust evaluations, will be conducted. These studies will increase our knowledge about optimal management and therapy of patients with mastocytosis in the future.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Valent, PeterUNSPECIFIEDorcid.org/0000-0003-0456-5095UNSPECIFIED
Arock, MichelUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Bonadonna, PatriziaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Brockow, KnutUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Broesby-Olsen, SigurdUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Escribano, LuisUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Gleixner, Karoline V.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Grattan, CliveUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Hadzijusufovic, EmirUNSPECIFIEDorcid.org/0000-0001-7409-4204UNSPECIFIED
Hagglund, HansUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Hermine, OlivierUNSPECIFIEDorcid.org/0000-0003-2574-3874UNSPECIFIED
Horny, Hans-PeterUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kluin-Nelemans, Hanneke C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Maurer, MarcusUNSPECIFIEDorcid.org/0000-0002-4121-481XUNSPECIFIED
Niedoszytko, MarekUNSPECIFIEDorcid.org/0000-0003-1089-1911UNSPECIFIED
Nedoszytko, BoguslawUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Nilsson, GunnarUNSPECIFIEDorcid.org/0000-0001-6795-5512UNSPECIFIED
Oude-Elberink, Hanneke N. G.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Orfao, AlbertoUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Radia, DeeptiUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Reiter, AndreasUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Siebenhaar, FrankUNSPECIFIEDorcid.org/0000-0003-4532-1644UNSPECIFIED
Sotlar, KarlUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Sperr, Wolfgang R.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Triggiani, MassimoUNSPECIFIEDorcid.org/0000-0001-7318-2093UNSPECIFIED
VanDoormaal, Jaap J.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Varkonyi, JuditUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Yavuz, SelimUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Hartmann, KarinUNSPECIFIEDorcid.org/0000-0002-4595-8226UNSPECIFIED
URN: urn:nbn:de:hbz:38-477239
DOI: 10.1007/s00508-012-0293-z
Journal or Publication Title: Wien. Klin. Wochen.
Volume: 124
Number: 23-24
Page Range: S. 807 - 815
Date: 2012
Publisher: SPRINGER WIEN
Place of Publication: WIEN
ISSN: 1613-7671
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
MAST-CELL DISORDERS; SYSTEMIC MASTOCYTOSIS; C-KIT; PROLIFERATIVE DISORDERS; BONE-MARROW; CLASSIFICATION; DIAGNOSIS; PKC412; ACTIVATION; TRYPTASEMultiple languages
Medicine, General & InternalMultiple languages
URI: http://kups.ub.uni-koeln.de/id/eprint/47723

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