Universität zu Köln

Harding, Richard ORCID: 0000-0001-9653-8689, Simon, Steffen T., Benalia, Hamid, Downing, Julia, Daveson, Barbara A., Higginson, Irene J. and Bausewein, Claudia ORCID: 0000-0002-0958-3041 (2011). The PRISMA Symposium 1: Outcome Tool Use. Disharmony in European Outcomes Research for Palliative and Advanced Disease Care: Too Many Tools in Practice. J. Pain Symptom Manage., 42 (4). S. 493 - 501. NEW YORK: ELSEVIER SCIENCE INC. ISSN 1873-6513

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Abstract

Context. As the European population ages and the number of cancer deaths annually increases, there is an urgent requirement to provide high-quality, effective care. The measurement of outcomes in advanced disease is complex, and to conduct comparative research and meta-analyses, appropriate tool selection is essential. Objectives. This study aimed to identify the outcome tools currently in use in end-of-life care (both clinically and for research) across Europe and investigate the preferred features of outcome tools from the perspective of those who select and apply them. Methods. A pan-European Internet-based survey of tool users was conducted in research and clinical populations. Respondents were asked to identify the tools they are using and describe ideal features of the measures. The study was conducted in accordance with guidance for best practice in web-based research. Results. Of the 311 participants who completed a survey, 99 tools in clinical care and audit, and 94 in research, were cited by less than 10 participants. Further data revealed that respondents require the number of potential tools to be rationalized and that brief tools are favored. Conclusion. The selection of valid and appropriate tools for palliative care populations requires expert guidance and support to ensure that clinicians and researchers are collecting data that have validity and potential for comparison within and between populations and countries. J Pain Symptom Manage 2011;42:493-500. (C) 2011 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Harding, Richard UNSPECIFIED orcid.org/0000-0001-9653-8689 UNSPECIFIED Simon, Steffen T. UNSPECIFIED UNSPECIFIED UNSPECIFIED Benalia, Hamid UNSPECIFIED UNSPECIFIED UNSPECIFIED Downing, Julia UNSPECIFIED UNSPECIFIED UNSPECIFIED Daveson, Barbara A. UNSPECIFIED UNSPECIFIED UNSPECIFIED Higginson, Irene J. UNSPECIFIED UNSPECIFIED UNSPECIFIED Bausewein, Claudia UNSPECIFIED orcid.org/0000-0002-0958-3041 UNSPECIFIED
URN:	urn:nbn:de:hbz:38-487872
DOI:	10.1016/j.jpainsymman.2011.06.008
Journal or Publication Title:	J. Pain Symptom Manage.
Volume:	42
Number:	4
Page Range:	S. 493 - 501
Date:	2011
Publisher:	ELSEVIER SCIENCE INC
Place of Publication:	NEW YORK
ISSN:	1873-6513
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language ADVANCED CANCER; SYMPTOM PREVALENCE; QUALITY; QUESTIONNAIRE; VALIDATION; SCALE; INSTRUMENT; CHECKLIST; INTERNET; PEOPLE Multiple languages Health Care Sciences & Services; Medicine, General & Internal; Clinical Neurology Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/48787