Universität zu Köln

Keeley, Caren and Dins, Timo ORCID: 0000-0003-2758-5275 (2022). Communicating (in) the Crisis [ComCri] - A research project about Persons with Profound Disabilities in times of the COVID-19 Pandemic. In: Quality of life for Persons with Severe and Multiple Disabilities, 08.-09. March 2022, Virtual (Hashemite University of Jordan & Sharjah City for Humanitarian Services). Speech.

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Abstract

People with profound disabilities are fundamentally more dependent than other vulnerable groups on caring support and sometimes also on proxy advocacy. This is particularly evident in the current pandemic situation. The project ComCri [Communicating (in) the Crisis. Health Literacy and Vulnerabilities of Persons with Profound Disabilities in Times of the COVID-19 Pandemic] (funded by the VW Foundation) has therefore set itself the task of investigating the specific vulnerabilities, communication and health needs of this group of people in the special situation of the COVID-19 pandemic. The focus is on the question of whether or how the special needs and vulnerabilities of this group of people are taken into account when communicating and implementing health-related requirements. In addition to theoretical and empirical findings on these questions, recommendations for action for successful support practice in crisis situations will also be produced. The research project is based on a triangular and transdisciplinary research design that follows the Grounded Theory methodology. In order to establish a preliminary theoretical understanding and to identify key factors of vulnerability in the context of the COVID-19 pandemic, the first round of a Delphi study was conducted in August 2021. Fifteen experts from the humanities and health sciences participated, as well as coordinators from service providers. The second round of the Delphi study took place in January 2022, in which the central findings of the evaluation process were presented to the experts surveyed for critical assessment in order to validate and concretise the theoretical constructs that were developed. The findings were then incorporated into an online survey of professionals and experts on the support practice of people with profound disabilities. The focus was set on the importance of health-related information for the group of people and their caregivers, and the content, accessibility and communication of health-related information will be surveyed. In addition, a field study will look at the everyday (living and working) life of persons with PIMD during the Corona pandemic to identify examples of successful support and communication practice and to involve the people themselves in research processes. This survey is planned for March 2022. In this contribution we will give an overlook about the whole project and present the first findings of the expert survey and also provide insights into the online survey and the field study.

Item Type:	Conference or Workshop Item (Speech)
Translated abstract:	Abstract Language People with profound disabilities are fundamentally more dependent than other vulnerable groups on caring support and sometimes also on proxy advocacy. This is particularly evident in the current pandemic situation. The project ComCri [Communicating (in) the Crisis. Health Literacy and Vulnerabilities of Persons with Profound Disabilities in Times of the COVID-19 Pandemic] (funded by the VW Foundation) has therefore set itself the task of investigating the specific vulnerabilities, communication and health needs of this group of people in the special situation of the COVID-19 pandemic. The focus is on the question of whether or how the special needs and vulnerabilities of this group of people are taken into account when communicating and implementing health-related requirements. In addition to theoretical and empirical findings on these questions, recommendations for action for successful support practice in crisis situations will also be produced. The research project is based on a triangular and transdisciplinary research design that follows the Grounded Theory methodology. In order to establish a preliminary theoretical understanding and to identify key factors of vulnerability in the context of the COVID-19 pandemic, the first round of a Delphi study was conducted in August 2021. Fifteen experts from the humanities and health sciences participated, as well as coordinators from service providers. The second round of the Delphi study took place in January 2022, in which the central findings of the evaluation process were presented to the experts surveyed for critical assessment in order to validate and concretise the theoretical constructs that were developed. The findings were then incorporated into an online survey of professionals and experts on the support practice of people with profound disabilities. The focus was set on the importance of health-related information for the group of people and their caregivers, and the content, accessibility and communication of health-related information will be surveyed. In addition, a field study will look at the everyday (living and working) life of persons with PIMD during the Corona pandemic to identify examples of successful support and communication practice and to involve the people themselves in research processes. This survey is planned for March 2022. In this contribution we will give an overlook about the whole project and present the first findings of the expert survey and also provide insights into the online survey and the field study. English
Creators:	Creators Email ORCID ORCID Put Code Keeley, Caren ckeeley@uni-koeln.de UNSPECIFIED UNSPECIFIED Dins, Timo timo.dins@uni-koeln.de orcid.org/0000-0003-2758-5275 110526593
URN:	urn:nbn:de:hbz:38-560732
Date:	9 March 2022
Language:	English
Faculty:	Faculty of Human Sciences
Divisions:	Faculty of Human Sciences > Department Heilpädagogik und Rehabilitation
Subjects:	Social sciences Education
Related URLs:	Conference
Event Type:	Conference
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/56073