Universität zu Köln

Schamong, Alice S., Liebermann-Jordanidis, Hannah, Brockmeier, Konrad, Sticker, Elisabeth and Kalbe, Elke . Psychosocial well-being and quality of life in siblings of children with congenital heart disease: A systematic review. J. Child Health Care. LONDON: SAGE PUBLICATIONS LTD. ISSN 1741-2889

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Abstract

Congenital heart disease (CHD) is a major global health problem. Until recently, the siblings of this group did not receive much attention. This review, conducted from November 2019 to October 2020, aims to summarize knowledge about psychosocial well-being and quality of life (QoL), associated factors, and interventions for siblings of children with CHD. Systematic searches were conducted in PubMed, PsycINFO, PsycARTICLES, Web of Science via EBSCOhost, and CENTRAL. Twelve articles were included. Results showed that psychosocial well-being was impaired in 14% to 40% of siblings. Negative impact of illness was highest for CHD siblings compared to siblings of children with cancer, cystic fibrosis, or diabetes. QoL was impaired in up to one-third. Siblings of children with CHD and cancer rated their QoL lower than those of siblings of children with cystic fibrosis or type-1 diabetes. Associated factors were sibling age, gender, socioeconomic status, miscarriage, previous sibling death, visibility of illness, and severity of condition. Only one of two interventions focused on siblings of CHD children. Although data are scarce and inhomogeneous, it indicates that siblings of CHD children suffer from lower psychosocial well-being and QoL than siblings of children with other chronic conditions. Interventions to improve their situation should be developed.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Schamong, Alice S. UNSPECIFIED UNSPECIFIED UNSPECIFIED Liebermann-Jordanidis, Hannah UNSPECIFIED UNSPECIFIED UNSPECIFIED Brockmeier, Konrad UNSPECIFIED UNSPECIFIED UNSPECIFIED Sticker, Elisabeth UNSPECIFIED UNSPECIFIED UNSPECIFIED Kalbe, Elke UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-567836
DOI:	10.1177/13674935211012933
Journal or Publication Title:	J. Child Health Care
Publisher:	SAGE PUBLICATIONS LTD
Place of Publication:	LONDON
ISSN:	1741-2889
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language CHRONIC HEALTH CONDITIONS; CHRONIC ILLNESS; FAMILIES; IMPACT; ADOLESCENTS; PREVALENCE; CHILDHOOD; PROGRAM Multiple languages Nursing; Pediatrics Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/56783