Universität zu Köln

Kremeike, Kerstin, Dojan, Thomas, Rosendahl, Carolin, Juenger, Saskia, Romotzky, Vanessa, Bostroem, Kathleen, Frerich, Gerrit and Voltz, Raymond (2021). Withstanding ambivalence is of particular importance-Controversies among experts on dealing with desire to die in palliative care. PLoS One, 16 (9). SAN FRANCISCO: PUBLIC LIBRARY SCIENCE. ISSN 1932-6203

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Abstract

In order to investigate controversies surrounding the desire to die phenomenon in palliative care by analyzing expert opinions on the topic, we carried out a secondary qualitative data analysis of free text comments collected during a Delphi survey that was designed to develop a conversation aid for dealing with desire to die in everyday clinical practice. Between 01/2018 and 03/2018, a two-round Delphi survey was carried out with national (German) and international palliative care experts. Free text comments were reinvestigated to identify controversies surrounding the desire to die phenomenon. An additional in-depth analysis focused on statements expressing attitudes towards proactively addressing (potential) desires to die. Within the Delphi survey, 103 of 149 multi-professional participants (almost all of them with practical and only six with exclusively theoretical expertise in palliative care) generated 444 free text comments. Thereof, we identified three main categories related to dealing with desire to die: outer framework, extended care system and health-professional-patient-relationship. Ambivalences, taboos and uncertainties surrounding desire to die in palliative care became apparent. Experts are divided concerning the practice of proactively addressing desire to die. Even if these conversations-especially the proactive approach-are also viewed critically, we conclude that open-ended and respectful communication about desire to die between health professionals and patients can be understood as an eligible intervention in palliative care. Proactively addressing the topic is a possible way to open up such conversations.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Kremeike, Kerstin UNSPECIFIED UNSPECIFIED UNSPECIFIED Dojan, Thomas UNSPECIFIED UNSPECIFIED UNSPECIFIED Rosendahl, Carolin UNSPECIFIED UNSPECIFIED UNSPECIFIED Juenger, Saskia UNSPECIFIED UNSPECIFIED UNSPECIFIED Romotzky, Vanessa UNSPECIFIED UNSPECIFIED UNSPECIFIED Bostroem, Kathleen UNSPECIFIED UNSPECIFIED UNSPECIFIED Frerich, Gerrit UNSPECIFIED UNSPECIFIED UNSPECIFIED Voltz, Raymond UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-568010
DOI:	10.1371/journal.pone.0257382
Journal or Publication Title:	PLoS One
Volume:	16
Number:	9
Date:	2021
Publisher:	PUBLIC LIBRARY SCIENCE
Place of Publication:	SAN FRANCISCO
ISSN:	1932-6203
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language HASTENED DEATH; COMMUNICATION; LIFE; WISH; RECOMMENDATIONS; CHALLENGES; ATTITUDES; REALITY; SUICIDE; PEOPLE Multiple languages Multidisciplinary Sciences Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/56801