Universität zu Köln

Lemmen, Clarissa ORCID: 0000-0001-9205-6551, Simic, Dusan ORCID: 0000-0002-7325-9481 and Stock, Stephanie ORCID: 0000-0002-1726-9300 (2021). A Vision of Future Healthcare: Potential Opportunities and Risks of Systems Medicine from a Citizen and Patient Perspective-Results of a Qualitative Study. Int. J. Environ. Res. Public Health, 18 (18). BASEL: MDPI. ISSN 1660-4601

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Abstract

Advances in (bio)medicine and technological innovations make it possible to combine high-dimensional, heterogeneous health data to better understand causes of diseases and make them usable for predictive, preventive, and precision medicine. This study aimed to determine views on and expectations of systems medicine from the perspective of citizens and patients in six focus group interviews, all transcribed verbatim and content analyzed. A future vision of the use of systems medicine in healthcare served as a stimulus for the discussion. The results show that although certain aspects of systems medicine were seen positive (e.g., use of smart technology, digitalization, and networking in healthcare), the perceived risks dominated. The high degree of technification was perceived as emotionally burdensome (e.g., reduction of people to their data, loss of control, dehumanization). The risk-benefit balance for the use of risk-prediction models for disease events and trajectories was rated as rather negative. There were normative and ethical concerns about unwanted data use, discrimination, and restriction of fundamental rights. These concerns and needs of citizens and patients must be addressed in policy frameworks and health policy implementation strategies to reduce negative emotions and attitudes toward systems medicine and to take advantage of its opportunities.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Lemmen, Clarissa UNSPECIFIED orcid.org/0000-0001-9205-6551 UNSPECIFIED Simic, Dusan UNSPECIFIED orcid.org/0000-0002-7325-9481 UNSPECIFIED Stock, Stephanie UNSPECIFIED orcid.org/0000-0002-1726-9300 UNSPECIFIED
URN:	urn:nbn:de:hbz:38-568317
DOI:	10.3390/ijerph18189879
Journal or Publication Title:	Int. J. Environ. Res. Public Health
Volume:	18
Number:	18
Date:	2021
Publisher:	MDPI
Place of Publication:	BASEL
ISSN:	1660-4601
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language PERSONALIZED MEDICINE; IMPLEMENTATION; TECHNOLOGY Multiple languages Environmental Sciences; Public, Environmental & Occupational Health Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/56831