Universität zu Köln

Achterrath, Sarah, Kruse, Teresa, Neuschulz, Julia, Graf, Isabelle, Zoeller, Joachim and Braumann, Bert (2021). Reducing the Burden of Care: Multidisciplinary Management of Late-Manifested Crouzon Syndrome-A Case Report. Children-Basel, 8 (12). BASEL: MDPI. ISSN 2227-9067

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Abstract

The therapy of patients with Crouzon syndrome involves a multidisciplinary team. In most cases, this therapy is extensive, time-consuming, and exhausting for the patient. This case report illustrates a temporally coordinated therapy plan that succeeds in reducing the burden of care. Showing typical extraoral characteristics of Crouzon syndrome, the patient had a frontal and left-sided crossbite, and impaction of the maxillary canines. Multidisciplinary therapy included the extraction of multiple teeth, midface distraction at Le Fort III level, and alignment of the impacted teeth. Before starting, during, and after completion of the treatment, the patient's oral health-related quality of life was assessed using COHIP-19. The combination of different treatment steps significantly reduced the duration of therapy. The therapy improved not only the patient's oro- and craniofacial function, but also the patient's facial appearance in a short treatment period. The patient's quality of life improved considerably during this time. In the treatment of severe craniofacial anomalies, the highest priority should be given to keeping the burden of care low. All measures should encourage young patients' appropriate psychosocial development despite extensive therapies, ensuring at the same time medically satisfactory treatment results.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Achterrath, Sarah UNSPECIFIED UNSPECIFIED UNSPECIFIED Kruse, Teresa UNSPECIFIED UNSPECIFIED UNSPECIFIED Neuschulz, Julia UNSPECIFIED UNSPECIFIED UNSPECIFIED Graf, Isabelle UNSPECIFIED UNSPECIFIED UNSPECIFIED Zoeller, Joachim UNSPECIFIED UNSPECIFIED UNSPECIFIED Braumann, Bert UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-569167
DOI:	10.3390/children8121122
Journal or Publication Title:	Children-Basel
Volume:	8
Number:	12
Date:	2021
Publisher:	MDPI
Place of Publication:	BASEL
ISSN:	2227-9067
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language ADVANCEMENT; LIFE Multiple languages Pediatrics Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/56916