Universität zu Köln

Salm, Sandra ORCID: 0000-0003-1392-0140, Mollenhauer, Judith, Hornbach, Carolin, Cecon, Natalia, Dresen, Antje, Houwaart, Stefanie, Arning, Anna, Goettel, Andrea, Schwickerath, Kathrin, Pfaff, Holger ORCID: 0000-0001-9154-6575, Scholten, Nadine ORCID: 0000-0002-7793-7745 and Krieger, Theresia (2021). Participatory Development and Preliminary Psychometric Properties of the User-Friendly Patient Information Material Checklist (UPIM-Check). Int. J. Environ. Res. Public Health, 18 (16). BASEL: MDPI. ISSN 1660-4601

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Abstract

The aims of this study were (1) to design a user-friendly instrument to assess and optimize patient information material (PIM), (2) to develop an English version, and (3) to test its psychometric properties. The instrument was needed to optimize the top-down developed PIM of the psycho-oncological care programme isPO. First, a literature-based PIM checklist was developed by a team of patient representatives, cancer care experts and professional researchers. Next, the checklist's reliability and validity were analysed by having cancer survivors assess the initial and optimized version of the isPO-leaflet. The User-friendly Patient Information Material Checklist (UPIM-Check), developed participatorily, was found to be effective for evaluating PIM. It uses a traffic light scale, and suggestions for improvement can be given for each criterion. Its reliability appeared to be excellent (alpha = 0.927). The optimized leaflet was rated significantly better than the initial one. The UPIM-Check is a reliable and valid instrument, which enables end-users (e.g., patients) to assess and optimize the quality of PIM according to scientific criteria and the needs of end-users. A bottom-up approach was essential for developing and validating the UPIM-Check. End-users constantly contributed with their specific knowledge. Thus, their position as co-researchers was significantly strengthened.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Salm, Sandra UNSPECIFIED orcid.org/0000-0003-1392-0140 UNSPECIFIED Mollenhauer, Judith UNSPECIFIED UNSPECIFIED UNSPECIFIED Hornbach, Carolin UNSPECIFIED UNSPECIFIED UNSPECIFIED Cecon, Natalia UNSPECIFIED UNSPECIFIED UNSPECIFIED Dresen, Antje UNSPECIFIED UNSPECIFIED UNSPECIFIED Houwaart, Stefanie UNSPECIFIED UNSPECIFIED UNSPECIFIED Arning, Anna UNSPECIFIED UNSPECIFIED UNSPECIFIED Goettel, Andrea UNSPECIFIED UNSPECIFIED UNSPECIFIED Schwickerath, Kathrin UNSPECIFIED UNSPECIFIED UNSPECIFIED Pfaff, Holger UNSPECIFIED orcid.org/0000-0001-9154-6575 UNSPECIFIED Scholten, Nadine UNSPECIFIED orcid.org/0000-0002-7793-7745 UNSPECIFIED Krieger, Theresia UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-571254
DOI:	10.3390/ijerph18168773
Journal or Publication Title:	Int. J. Environ. Res. Public Health
Volume:	18
Number:	16
Date:	2021
Publisher:	MDPI
Place of Publication:	BASEL
ISSN:	1660-4601
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language EDUCATION MATERIALS; ASSESSMENT-TOOL; QUALITY; CANCER; SUITABILITY; COEFFICIENT; INSTRUMENT; DISCERN Multiple languages Environmental Sciences; Public, Environmental & Occupational Health Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/57125