Universität zu Köln

Ansmann, Lena, Heuser, Christian ORCID: 0000-0001-9050-5800, Diekmann, Annika, Schellenberger, Barbara, Biehl, Claudia, Danaei, Mahmoud, Eichler, Christian, Heinz, Dina, Hocke, Andrea, Malter, Wolfram, Melekian, Badrig, Metin, Havva, Mustea, Alexander, Palatty, Jenci, Peisker, Uwe, Petschat, Ines and Ernstmann, Nicole (2021). Patient participation in multidisciplinary tumor conferences: How is it implemented? What is the patients' role? What are patients' experiences? Cancer Med., 10 (19). S. 6714 - 6725. HOBOKEN: WILEY. ISSN 2045-7634

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Abstract

Background Prior research has shown that around 5%-7% of patients in breast cancer centers in Germany participate in the discussion of their own case within a multidisciplinary tumor conference (MTC). The PINTU study is one of the first to research this practice. The objective is to describe (a) how patient participation in MTCs is implemented, (b) what is the role of patients, and (c) how patients experience MTCs. Methods MTCs in six breast and gynecological cancer centers in North Rhine-Westphalia, Germany, with and without patient participation, are studied prospectively by (non)participatory, structured observation. Breast and gynecological cancer patients completed surveys before, directly after, and 4 weeks after MTC participation. Data are analyzed descriptively. Results Case discussions of a sample of n = 317 patients (n = 95 with MTC participation and n = 222 without) were observed. Survey data were obtained from n = 242 patients (n = 87 and n = 155). Observational data showed heterogeneity in the ways MTC participation was practiced. Among participating patients, 89% had the opportunity to express their opinion and 61% were involved in decision-making. Whereas most patients reported positive experiences and would recommend participation, some had negative experiences and regretted participating. Conclusions Due to a lack of recommendations, hospitals implement patient participation in MTCs in many different ways. So far, it is unknown which setting and procedures of MTC participation are beneficial for patients. However, existing evidence on communication in cancer care together with this exploratory study's findings can build the basis for developing recommendations for hospitals that invite their patients to MTCs. Clinical trial registration number German Clinical Trials Register Nr. DRKS00012552.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Ansmann, Lena UNSPECIFIED UNSPECIFIED UNSPECIFIED Heuser, Christian UNSPECIFIED orcid.org/0000-0001-9050-5800 UNSPECIFIED Diekmann, Annika UNSPECIFIED UNSPECIFIED UNSPECIFIED Schellenberger, Barbara UNSPECIFIED UNSPECIFIED UNSPECIFIED Biehl, Claudia UNSPECIFIED UNSPECIFIED UNSPECIFIED Danaei, Mahmoud UNSPECIFIED UNSPECIFIED UNSPECIFIED Eichler, Christian UNSPECIFIED UNSPECIFIED UNSPECIFIED Heinz, Dina UNSPECIFIED UNSPECIFIED UNSPECIFIED Hocke, Andrea UNSPECIFIED UNSPECIFIED UNSPECIFIED Malter, Wolfram UNSPECIFIED UNSPECIFIED UNSPECIFIED Melekian, Badrig UNSPECIFIED UNSPECIFIED UNSPECIFIED Metin, Havva UNSPECIFIED UNSPECIFIED UNSPECIFIED Mustea, Alexander UNSPECIFIED UNSPECIFIED UNSPECIFIED Palatty, Jenci UNSPECIFIED UNSPECIFIED UNSPECIFIED Peisker, Uwe UNSPECIFIED UNSPECIFIED UNSPECIFIED Petschat, Ines UNSPECIFIED UNSPECIFIED UNSPECIFIED Ernstmann, Nicole UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-594450
DOI:	10.1002/cam4.4213
Journal or Publication Title:	Cancer Med.
Volume:	10
Number:	19
Page Range:	S. 6714 - 6725
Date:	2021
Publisher:	WILEY
Place of Publication:	HOBOKEN
ISSN:	2045-7634
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language BREAST-CANCER PATIENTS; TEAM MEETINGS; DECISION-MAKING; MANAGEMENT; DISEASE; IMPACT Multiple languages Oncology Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/59445