Universität zu Köln

Pauli, Berenike ORCID: 0000-0002-4209-6659, Strupp, Julia, Schloesser, Karlotta, Voltz, Raymond, Jung, Norma, Leisse, Charlotte, Bausewein, Claudia, Pralong, Anne and Simon, Steffen T. (2022). It's like standing in front of a prison fence - Dying during the SARS-CoV2 pandemic: A qualitative study of bereaved relatives' experiences. Palliat. Med., 36 (4). S. 708 - 717. LONDON: SAGE PUBLICATIONS LTD. ISSN 1477-030X

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Abstract

Background: Since the onset of the SARS CoV2 pandemic, protective and isolation measures had a strong impact on the care and support provided to seriously ill and dying people at the end-of-life. Aim: Exploring bereaved relatives' experiences of end-of-life care during the SARS-CoV2 pandemic. Design: Qualitative interview study with bereaved relatives. Participants: Thirty-two relatives of patients who died during the pandemic, regardless of infection with SARS-CoV2. Results: Three core categories were identified: needs, burden and best practice. Relatives wished for a contact person responsible for providing information on the medical and mental condition of their family members. The lack of information, of support by others and physical closeness due to the visiting restrictions, as well as not being able to say goodbye, were felt as burdens and led to emotional distress. However, case-by-case decisions were made and creative ways of staying in touch were experienced positively. Conclusions: Our results indicate that the strong need for closeness when a family member was dying could not be met due to the pandemic. This led to suffering that can be prevented. Visits need to be facilitated by making considered decisions on a case-by-case basis. For easy communication with relatives, approaches should be made by healthcare professionals and support for virtual communication should be offered. Furthermore, the results of the study can help to implement or develop ideas to enable dignified farewells even during pandemics.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Pauli, Berenike UNSPECIFIED orcid.org/0000-0002-4209-6659 UNSPECIFIED Strupp, Julia UNSPECIFIED UNSPECIFIED UNSPECIFIED Schloesser, Karlotta UNSPECIFIED UNSPECIFIED UNSPECIFIED Voltz, Raymond UNSPECIFIED UNSPECIFIED UNSPECIFIED Jung, Norma UNSPECIFIED UNSPECIFIED UNSPECIFIED Leisse, Charlotte UNSPECIFIED UNSPECIFIED UNSPECIFIED Bausewein, Claudia UNSPECIFIED UNSPECIFIED UNSPECIFIED Pralong, Anne UNSPECIFIED UNSPECIFIED UNSPECIFIED Simon, Steffen T. UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-670042
DOI:	10.1177/02692163221076355
Journal or Publication Title:	Palliat. Med.
Volume:	36
Number:	4
Page Range:	S. 708 - 717
Date:	2022
Publisher:	SAGE PUBLICATIONS LTD
Place of Publication:	LONDON
ISSN:	1477-030X
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language FAMILY CAREGIVERS; PALLIATIVE CARE; LIFE CARE; COVID-19; GRIEF; END; PATIENT; MEMBERS; DEATH Multiple languages Health Care Sciences & Services; Public, Environmental & Occupational Health; Medicine, General & Internal Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/67004