Universität zu Köln

Mohamad, Yehya ORCID: 0000-0002-6240-0099, Gabber, Alexander, Heidenblut, Sonja, Zenz, Daniel, Siddiqi, Anam and Gappa, Henrike (2022). HOW TO OVERCOME LACK OF HEALTH RECORD DATA AND PRIVACY OBSTACLES IN INITIAL PHASES OF MEDICAL DATA ANALYSIS PROJECTS. Comput. Inform., 41 (1). S. 233 - 253. BRATISLAVA: SLOVAK ACAD SCIENCES INST INFORMATICS. ISSN 1335-9150

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Abstract

The lack of electronic health record data in general and especially at initial phases of medical research projects is common and is one of the main reasons for delay or failure of such projects. One of the health areas with little attention is the home care area, where patients are being supported by their families or informal caregiver at home. In this paper we present related work on medical data formats and synthetical data generation of medical health records. Furthermore, it presents an approach to generate synthetic electronic health records (HER) that are readily available; suited to research; and free of legal, privacy, security and intellectual property restrictions to be used in home care research projects. We adapted and used SyntheaTM, an open-source software framework that simulates the lifespans of synthetic patients to generate synthetic EHRs. This paper presents the use case of home care from the capturing of user requirements of home care patients, translating the requirements into a data model, feeding the data model into Synthea (TM) framework, which produces synthetical health data records mainly as QuestionnaireResponse instance of the Fast Healthcare Interoperability Resources (FHIR) to using these EHRs to build an initial machine learning data model for home care.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Mohamad, Yehya UNSPECIFIED orcid.org/0000-0002-6240-0099 UNSPECIFIED Gabber, Alexander UNSPECIFIED UNSPECIFIED UNSPECIFIED Heidenblut, Sonja UNSPECIFIED UNSPECIFIED UNSPECIFIED Zenz, Daniel UNSPECIFIED UNSPECIFIED UNSPECIFIED Siddiqi, Anam UNSPECIFIED UNSPECIFIED UNSPECIFIED Gappa, Henrike UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-671270
DOI:	10.31577/cai_2022_1_233
Journal or Publication Title:	Comput. Inform.
Volume:	41
Number:	1
Page Range:	S. 233 - 253
Date:	2022
Publisher:	SLOVAK ACAD SCIENCES INST INFORMATICS
Place of Publication:	BRATISLAVA
ISSN:	1335-9150
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language HOME-CARE; DEMENTIA; PEOPLE Multiple languages Computer Science, Artificial Intelligence Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/67127