Universität zu Köln

Gauder, Sonja, Pralong, Anne ORCID: 0000-0001-8201-2344, Remi, Constanze ORCID: 0000-0001-7655-0306, Hodiamont, Farina, Klinger, Isabell ORCID: 0000-0003-2764-0190, Heckel, Maria, Simon, Steffen T. and Bausewein, Claudia ORCID: 0000-0002-0958-3041 (2022). Development of a national strategy with recommendations for the care of seriously ill and dying people and their relatives in pandemics: A modified Delphi study. Palliat. Med., 36 (8). S. 1285 - 1296. LONDON: SAGE PUBLICATIONS LTD. ISSN 1477-030X

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Abstract

Background: The SARS-CoV-2 pandemic is a constant challenge for health care systems, also in Germany. Care of seriously ill and dying people and their relatives is often neglected and suffering increased due to sub-optimal symptom management, visiting restrictions and lonely dying. The project Palliative Care in Pandemics (PallPan) intended to develop a national strategy including evidence- and consensus-based recommendations for the care of seriously ill and dying people and their relatives during pandemic times in Germany. Aim: To reach consensus on evidence-based recommendations for the care of seriously ill and dying people and their relatives in pandemics. Methods: Three-step consensus process comprising two online Delphi rounds and an expert workshop conducted from April to June 2021. One hundred twenty experts from various areas of healthcare, administration, and politics in Germany were included. Results: During the consensus-process, pre-formulated evidence-based recommendations were refined step-by-step. This resulted in consensus on 33 recommendations on the topics of supporting patients and their relatives, supporting staff, and supporting and maintaining structures and provision of palliative care. The recommendations address professional carers and various responsibilities on a governmental, federal state and municipal level, and in healthcare facilities. Conclusion: We provide evidence and consensus-based recommendations for the care of seriously ill and dying people and their relatives in pandemics in Germany. This is an important step towards a pandemic preparedness and hopefully improves the future palliative care response to pandemics.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Gauder, Sonja UNSPECIFIED UNSPECIFIED UNSPECIFIED Pralong, Anne UNSPECIFIED orcid.org/0000-0001-8201-2344 UNSPECIFIED Remi, Constanze UNSPECIFIED orcid.org/0000-0001-7655-0306 UNSPECIFIED Hodiamont, Farina UNSPECIFIED UNSPECIFIED UNSPECIFIED Klinger, Isabell UNSPECIFIED orcid.org/0000-0003-2764-0190 UNSPECIFIED Heckel, Maria UNSPECIFIED UNSPECIFIED UNSPECIFIED Simon, Steffen T. UNSPECIFIED UNSPECIFIED UNSPECIFIED Bausewein, Claudia UNSPECIFIED orcid.org/0000-0002-0958-3041 UNSPECIFIED
URN:	urn:nbn:de:hbz:38-673992
DOI:	10.1177/02692163221114536
Journal or Publication Title:	Palliat. Med.
Volume:	36
Number:	8
Page Range:	S. 1285 - 1296
Date:	2022
Publisher:	SAGE PUBLICATIONS LTD
Place of Publication:	LONDON
ISSN:	1477-030X
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language PALLIATIVE CARE; SERVICES; GUIDANCE; TOOL Multiple languages Health Care Sciences & Services; Public, Environmental & Occupational Health; Medicine, General & Internal Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/67399