Universität zu Köln

David, Nicole ORCID: 0000-0001-5233-1977, Dueckert, Sophia, Gewohn, Petia, Koenig, Hannah, Rahlff, Pascal, Erik, Frank, Vogeley, Kai ORCID: 0000-0002-5891-5831, Schoettle, Daniel, Konnopka, Alexander, Schulz, Holger and Peth, Judith ORCID: 0000-0002-2476-9717 (2022). Mixed-methods investigation of barriers and needs in mental healthcare of adults with autism and recommendations for future care (BarrierfreeASD): study protocol. BMJ Open, 12 (8). LONDON: BMJ PUBLISHING GROUP. ISSN 2044-6055

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Abstract

Introduction Autism refers to an early-onset neurodevelopmental condition with characteristic impairments and difficulties in practical living skills, which persist across the lifespan such that adults with autism often require substantial support and comprehensive care. Yet, mental health and other services are frequently unavailable for adults with autism despite considerable need for mental healthcare and individual, familial and socioeconomic burdens. This study will (1) examine current needs, barriers and burdens related to ineffective healthcare of adults with autism in Germany, (2) develop specific recommendations for a need-oriented mental healthcare model and (3) evaluate its future implementation. Methods and analysis A mixed-methods design with three phases will be conducted. In phase 1, current mental healthcare for adults with autism will be assessed at three levels (individual, structural and professional) and from three perspectives (adults with autism, relatives and healthcare providers) using (1) focus groups/interviews (qualitative data) and (2) large-scale online surveys (quantitative data). Furthermore, service utilisation and related costs will be estimated. In phase 2, recommendations for a future healthcare model will be derived based on phase 1, considering the heterogeneous and complex needs within the autism spectrum and specifying indications for recommended services. In phase 3, these will again be evaluated by the three stakeholder groups using mixed-methods and analysed regarding feasibility of implementation and cost-effectiveness. Our study will, thus, contribute to a better translation of recommendations into practice to reduce disability, burden and costs related to ineffective healthcare and improve mental health outcomes for adults with autism and those who support them. Ethics and dissemination This study was approved by the Local Psychological Ethics Commission of the Center for Psychosocial Medicine at the University Medical Center Hamburg-Eppendorf (LPEK-0227). Findings will be disseminated via scientific meetings and peer-reviewed journals. Cooperating partners and associations will be informed about the study's course and findings by regular newsletters and meetings.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code David, Nicole UNSPECIFIED orcid.org/0000-0001-5233-1977 UNSPECIFIED Dueckert, Sophia UNSPECIFIED UNSPECIFIED UNSPECIFIED Gewohn, Petia UNSPECIFIED UNSPECIFIED UNSPECIFIED Koenig, Hannah UNSPECIFIED UNSPECIFIED UNSPECIFIED Rahlff, Pascal UNSPECIFIED UNSPECIFIED UNSPECIFIED Erik, Frank UNSPECIFIED UNSPECIFIED UNSPECIFIED Vogeley, Kai UNSPECIFIED orcid.org/0000-0002-5891-5831 UNSPECIFIED Schoettle, Daniel UNSPECIFIED UNSPECIFIED UNSPECIFIED Konnopka, Alexander UNSPECIFIED UNSPECIFIED UNSPECIFIED Schulz, Holger UNSPECIFIED UNSPECIFIED UNSPECIFIED Peth, Judith UNSPECIFIED orcid.org/0000-0002-2476-9717 UNSPECIFIED
URN:	urn:nbn:de:hbz:38-676802
DOI:	10.1136/bmjopen-2022-061773
Journal or Publication Title:	BMJ Open
Volume:	12
Number:	8
Date:	2022
Publisher:	BMJ PUBLISHING GROUP
Place of Publication:	LONDON
ISSN:	2044-6055
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language STANDARDIZED UNIT COSTS; QUALITY-OF-LIFE; SPECTRUM DISORDER; INTELLECTUAL DISABILITY; EXPERIENCES; TRANSITION; QUESTIONNAIRE; POPULATION; PREVALENCE; INSTRUMENT Multiple languages Medicine, General & Internal Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/67680