Universität zu Köln

Krause, Nicole ORCID: 0000-0001-6681-7054, Riemann-Lorenz, Karin, Rahn, Anne Christin, Poettgen, Jana, Koepke, Sascha, Meyer, Bjoern, Thale, Frithjof, Temmes, Herbert, van de Loo, Markus, Gold, Stefan M. and Heesen, Christoph (2022). 'That would have been the perfect thing after diagnosis': development of a digital lifestyle management application in multiple sclerosis. Ther. Adv. Neurol. Disord., 15. LONDON: SAGE PUBLICATIONS LTD. ISSN 1756-2864

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Abstract

Background: A multiple sclerosis (MS) diagnosis urges decision-making on immunotherapies, while persons with MS (PwMS) need to develop a coping concept in parallel. At this stage, PwMS ask how they themselves may contribute to controlling the disease. Evidence suggests that maintaining a healthy lifestyle (e.g. physical activity and stress management) is a key factor for healthy aging and preserving activity, while data on MS are complex. Objectives: Following the Medical Research Council framework, this study aimed to develop and investigate the feasibility of a new digital health application that conveys evidence-based patient information about lifestyle factors in MS and engages PwMS in relevant behaviour change techniques. Methods: Based on a digital health application promoting lifestyle management in breast cancer survivors, an MS-specific adaptation ('levidex') was developed. Feasibility was tested with 15 PwMS and eight MS experts. Subsequently, a six-week pilot study with eight PwMS was conducted. All participants provided feedback on practicability and acceptability via a questionnaire and took part in a semi-structured telephone interview. Levidex was revised after each test phase. Results: The final levidex tool includes 16 modules, 177 references and several other functions. Feasibility results showed that PwMS and MS experts perceived levidex as understandable (14 out of 15; 6 out of 8), trustworthy (15 out of 15; 8 out of 8), and relevant (10 out of 15; 8 out of 8). Interviews revealed potential for improvement regarding the length and complexity of some content. Piloting of the revised version confirmed good feasibility and high acceptance. Most participants felt inspired to initiate (7 out of 8) or had already implemented (5 out of 8) lifestyle changes after working with levidex. Conclusion: Results suggest that levidex is feasible and well-accepted by PwMS and MS experts. It might be a useful tool to support PwMS in adapting to their diagnosis and initiating health-promoting lifestyle changes.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Krause, Nicole UNSPECIFIED orcid.org/0000-0001-6681-7054 UNSPECIFIED Riemann-Lorenz, Karin UNSPECIFIED UNSPECIFIED UNSPECIFIED Rahn, Anne Christin UNSPECIFIED UNSPECIFIED UNSPECIFIED Poettgen, Jana UNSPECIFIED UNSPECIFIED UNSPECIFIED Koepke, Sascha UNSPECIFIED UNSPECIFIED UNSPECIFIED Meyer, Bjoern UNSPECIFIED UNSPECIFIED UNSPECIFIED Thale, Frithjof UNSPECIFIED UNSPECIFIED UNSPECIFIED Temmes, Herbert UNSPECIFIED UNSPECIFIED UNSPECIFIED van de Loo, Markus UNSPECIFIED UNSPECIFIED UNSPECIFIED Gold, Stefan M. UNSPECIFIED UNSPECIFIED UNSPECIFIED Heesen, Christoph UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-687534
DOI:	10.1177/17562864221118729
Journal or Publication Title:	Ther. Adv. Neurol. Disord.
Volume:	15
Date:	2022
Publisher:	SAGE PUBLICATIONS LTD
Place of Publication:	LONDON
ISSN:	1756-2864
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language BEHAVIOR-CHANGE TECHNIQUES; PATIENT INFORMATION; DEPRESSION; PROGRAM; DEPREXIS Multiple languages Clinical Neurology Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/68753