Universität zu Köln

Habek, Mario ORCID: 0000-0002-3360-1748, Leys, Fabian, Skoric, Magdalena Krbot ORCID: 0000-0002-1087-3732, Carneiro, Diogo Reis, Calandra-Buonaura, Giovanna, Camaradou, Jennifer, Chiaro, Giacomo, Cortelli, Pietro ORCID: 0000-0002-3633-8818, Falup-Pecurariu, Cristian, Granata, Roberta, Guaraldi, Pietro, Helbok, Raimund, Hilz, Max J., Iodice, Valeria, Jordan, Jens, Kaal, Evert C. A., Kamondi, Anita, Le Traon, Anne Pavy, Rocha, Isabel, Sellner, Johann, Senard, Jean Michel, Terkelsen, Astrid, Wenning, Gregor K., Berger, Thomas, Thijs, Roland D., Struhal, Walter and Fanciulli, Alessandra (2022). Clinical autonomic nervous system laboratories in Europe A joint survey of the European Academy of Neurology and the European Federation of Autonomic Societies. Eur. J. Neurol., 29 (12). S. 3633 - 3647. HOBOKEN: WILEY. ISSN 1468-1331

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Abstract

Background and purpose Disorders of the autonomic nervous system (ANS) are common conditions, but it is unclear whether access to ANS healthcare provision is homogeneous across European countries. The aim of this study was to identify neurology-driven or interdisciplinary clinical ANS laboratories in Europe, describe their characteristics and explore regional differences. Methods We contacted the European national ANS and neurological societies, as well as members of our professional network, to identify clinical ANS laboratories in each country and invite them to answer a web-based survey. Results We identified 84 laboratories in 22 countries and 46 (55%) answered the survey. All laboratories perform cardiovascular autonomic function tests, and 83% also perform sweat tests. Testing for catecholamines and autoantibodies are performed in 63% and 56% of laboratories, and epidermal nerve fiber density analysis in 63%. Each laboratory is staffed by a median of two consultants, one resident, one technician and one nurse. The median (interquartile range [IQR]) number of head-up tilt tests/laboratory/year is 105 (49-251). Reflex syncope and neurogenic orthostatic hypotension are the most frequently diagnosed cardiovascular ANS disorders. Thirty-five centers (76%) have an ANS outpatient clinic, with a median (IQR) of 200 (100-360) outpatient visits/year; 42 centers (91%) also offer inpatient care (median 20 [IQR 4-110] inpatient stays/year). Forty-one laboratories (89%) are involved in research activities. We observed a significant difference in the geographical distribution of ANS services among European regions: 11 out of 12 countries from North/West Europe have at least one ANS laboratory versus 11 out of 21 from South/East/Greater Europe (p = 0.021). Conclusions This survey highlights disparities in the availability of healthcare services for people with ANS disorders across European countries, stressing the need for improved access to specialized care in South, East and Greater Europe.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Habek, Mario UNSPECIFIED orcid.org/0000-0002-3360-1748 UNSPECIFIED Leys, Fabian UNSPECIFIED UNSPECIFIED UNSPECIFIED Skoric, Magdalena Krbot UNSPECIFIED orcid.org/0000-0002-1087-3732 UNSPECIFIED Carneiro, Diogo Reis UNSPECIFIED UNSPECIFIED UNSPECIFIED Calandra-Buonaura, Giovanna UNSPECIFIED UNSPECIFIED UNSPECIFIED Camaradou, Jennifer UNSPECIFIED UNSPECIFIED UNSPECIFIED Chiaro, Giacomo UNSPECIFIED UNSPECIFIED UNSPECIFIED Cortelli, Pietro UNSPECIFIED orcid.org/0000-0002-3633-8818 UNSPECIFIED Falup-Pecurariu, Cristian UNSPECIFIED UNSPECIFIED UNSPECIFIED Granata, Roberta UNSPECIFIED UNSPECIFIED UNSPECIFIED Guaraldi, Pietro UNSPECIFIED UNSPECIFIED UNSPECIFIED Helbok, Raimund UNSPECIFIED UNSPECIFIED UNSPECIFIED Hilz, Max J. UNSPECIFIED UNSPECIFIED UNSPECIFIED Iodice, Valeria UNSPECIFIED UNSPECIFIED UNSPECIFIED Jordan, Jens UNSPECIFIED UNSPECIFIED UNSPECIFIED Kaal, Evert C. A. UNSPECIFIED UNSPECIFIED UNSPECIFIED Kamondi, Anita UNSPECIFIED UNSPECIFIED UNSPECIFIED Le Traon, Anne Pavy UNSPECIFIED UNSPECIFIED UNSPECIFIED Rocha, Isabel UNSPECIFIED UNSPECIFIED UNSPECIFIED Sellner, Johann UNSPECIFIED UNSPECIFIED UNSPECIFIED Senard, Jean Michel UNSPECIFIED UNSPECIFIED UNSPECIFIED Terkelsen, Astrid UNSPECIFIED UNSPECIFIED UNSPECIFIED Wenning, Gregor K. UNSPECIFIED UNSPECIFIED UNSPECIFIED Berger, Thomas UNSPECIFIED UNSPECIFIED UNSPECIFIED Thijs, Roland D. UNSPECIFIED UNSPECIFIED UNSPECIFIED Struhal, Walter UNSPECIFIED UNSPECIFIED UNSPECIFIED Fanciulli, Alessandra UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-697658
DOI:	10.1111/ene.15538
Journal or Publication Title:	Eur. J. Neurol.
Volume:	29
Number:	12
Page Range:	S. 3633 - 3647
Date:	2022
Publisher:	WILEY
Place of Publication:	HOBOKEN
ISSN:	1468-1331
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language Clinical Neurology; Neurosciences Multiple languages
URI:	http://kups.ub.uni-koeln.de/id/eprint/69765