Universität zu Köln

Salm, Sandra ORCID: 0000-0003-1392-0140 (2023). Patient involvement and engagement in health services research in the context of psycho-oncological care. PhD thesis, Universität zu Köln.

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Abstract

Optimising healthcare not only needs scientifically generated evidence, but also patients’ experiential knowledge. Health services research (HSR) can pursue the approach of patient involvement and engagement (PIE) which is characterised by patients and scientists working together as a team to generate knowledge to improve healthcare. PIE considers every type of expertise equal. The principles also include patients and professional researchers’ co-learning, availability of adequate resources for the PIE processes and that the cooperation is characterised by trust, honesty, and respect. The visibility of PIE in HSR in Germany is still low and there are many unanswered questions about its implementation. It was investigated which levels, processes, and results of PIE can be realised in HSR projects. For systematic recording, a special reflection instrument was created based on models of PIE in HSR and applied to the four publications of the dissertation projects (DP). All DPs have been conducted in the context of psycho-oncological care, as cancer research in Germany has a pioneering role with regard to PIE. The first DP comprises epidemiological analyses of mental disorders in newly diagnosed cancer patients based on claims data. In the second DP, the development of the new form of care 'integrated, cross-sectoral Psycho-Oncology' (isPO) was evaluated. In DP 3, the participatory development of an optimisation instrument for patient information material was carried out. The fourth DP consists of a mixed-methods evaluation of the isPO onco-guide service. While there was no PIE in DP 1, an increased PIE can be observed in the following DPs and thus in the task areas - from preliminary stages of PIE to co-learning. Data collection and dissemination were characterised by high levels of PIE. PIE proved to be particularly relevant in strengthening the patients' experiential expertise and empowering them for research tasks.

Item Type:	Thesis (PhD thesis)
Creators:	Creators Email ORCID ORCID Put Code Salm, Sandra salm@em.uni-frankfurt.de orcid.org/0000-0003-1392-0140 UNSPECIFIED
URN:	urn:nbn:de:hbz:38-718588
Date:	2023
Language:	English
Faculty:	Faculty of Medicine
Divisions:	Faculty of Medicine > Medizinsoziologie, Versorgungsforschung und Rehabilitationswissenschaft > Institut für Medizinsoziologie, Versorgungsforschung und Rehabilitationswissenschaft (IMVR)
Subjects:	Social sciences Medical sciences Medicine
Uncontrolled Keywords:	Keywords Language patient involvement UNSPECIFIED patient engagement UNSPECIFIED health services research UNSPECIFIED psycho-oncology UNSPECIFIED cancer care UNSPECIFIED evaluation UNSPECIFIED administrative data UNSPECIFIED new form of care UNSPECIFIED patient information material UNSPECIFIED peer support UNSPECIFIED
Date of oral exam:	20 December 2023
Referee:	Name Academic Title Kusch, Michael PD Dr. Albus, Christian Prof. Dr. Wiltink, Jörg Prof. Dr.
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/71858