Universität zu Köln

Journal Article

Kasdorf, Alina ORCID: 0000-0002-4982-9288, Dust, Gloria ORCID: 0000-0003-3119-0997, Vennedey, Vera ORCID: 0000-0003-4977-750X, Rietz, Christian ORCID: 0000-0002-7057-4937, Polidori, Maria C. ORCID: 0000-0002-8881-904X, Voltz, Raymond ORCID: 0000-0002-4761-3395 and Strupp, Julia ORCID: 0000-0003-3135-2693 (2021). What are the risk factors for avoidable transitions in the last year of life? A qualitative exploration of professionals’ perspectives for improving care in Germany. BMC Health Services Research, 21 (1). Springer Nature. ISSN 1472-6963

Solari, Alessandra ORCID: 0000-0001-9930-7579, Giordano, Andrea ORCID: 0000-0003-4466-9788, Sastre-Garriga, Jaume, Köpke, Sascha ORCID: 0000-0003-4106-4919, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Kleiter, Ingo ORCID: 0000-0002-8249-4408, Aleksovska, Katina ORCID: 0000-0002-2372-4453, Battaglia, Mario A. ORCID: 0000-0002-8106-8239, Bay, Jette, Copetti, Massimiliano ORCID: 0000-0002-7960-5947, Drulovic, Jelena ORCID: 0000-0002-4516-3458, Kooij, Liesbeth, Mens, John, Murillo, Edwin R. Meza ORCID: 0000-0001-6065-3546, Milanov, Ivan ORCID: 0000-0002-4522-4070, Milo, Ron ORCID: 0000-0001-8556-2579, Pekmezovic, Tatiana ORCID: 0000-0001-7978-1409, Vosburgh, Janine, Silber, Eli ORCID: 0000-0002-3972-0780, Veronese, Simone ORCID: 0000-0002-9555-7252, Patti, Francesco ORCID: 0000-0002-6923-0846, Voltz, Raymond ORCID: 0000-0002-4761-3395 and Oliver, David J. ORCID: 0000-0001-9302-3225 (2020). EAN Guideline on Palliative Care of People with Severe, Progressive Multiple Sclerosis. Journal of Palliative Medicine, 23 (11). pp. 1426-1443. Liebert. ISSN 1096-6218

Solari, Alessandra ORCID: 0000-0001-9930-7579, Giordano, Andrea ORCID: 0000-0003-4466-9788, Sastre‐Garriga, J., Köpke, Sascha ORCID: 0000-0003-4106-4919, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Kleiter, I., Aleksovska, K., Battaglia, M. A., Bay, J., Copetti, M., Drulovic, J., Kooij, L., Mens, J., Meza Murillo, E. R. ORCID: 0000-0001-6065-3546, Milanov, I., Milo, R., Pekmezovic, T., Vosburgh, J., Silber, E., Veronese, Simone ORCID: 0000-0002-9555-7252, Patti, Francesco ORCID: 0000-0002-6923-0846, Voltz, Raymond ORCID: 0000-0002-4761-3395 and Oliver, David ORCID: 0000-0001-9302-3225 (2020). EAN guideline on palliative care of people with severe, progressive multiple sclerosis. European Journal of Neurology, 27 (8). pp. 1510-1529. Wiley-Blackwell. ISSN 1351-5101

Romotzky, Vanessa ORCID: 0000-0002-5765-692X, Strupp, Julia ORCID: 0000-0003-3135-2693, Hayn, Alexander ORCID: 0000-0002-5385-454X, Ruefer, Jens Ulrich, Gruemmer, Judith and Voltz, Raymond ORCID: 0000-0002-4761-3395 (2019). All of a sudden, a lot less still makes it worthwhile to be alive: Palliative care patients' views on life. Palliat. Support Care, 17 (2). S. 214 - 221. NEW YORK: CAMBRIDGE UNIV PRESS. ISSN 1478-9523

Eichenauer, Dennis A. ORCID: 0000-0002-1927-3514, Golla, Heidrun ORCID: 0000-0002-4403-630X, Thielen, Indra, Hallek, Michael ORCID: 0000-0002-7425-4455, Voltz, Raymond ORCID: 0000-0002-4761-3395 and Perrar, Klaus Maria (2019). Characteristics and course of patients with advanced hematologic malignancies receiving specialized inpatient palliative care at a German university hospital. Annals of Hematology, 98 (11). pp. 2605-2607. Springer Nature. ISSN 0939-5555

Groebe, Bernadette, Rietz, Christian ORCID: 0000-0002-7057-4937, Voltz, Raymond ORCID: 0000-0002-4761-3395 and Strupp, Julia ORCID: 0000-0003-3135-2693 (2019). How to Talk About Attitudes Toward the End of Life: A Qualitative Study. Am. J. Hosp. Palliat. Med., 36 (8). S. 697 - 705. THOUSAND OAKS: SAGE PUBLICATIONS INC. ISSN 1938-2715

Köpke, Sascha ORCID: 0000-0003-4106-4919, Giordano, Andrea ORCID: 0000-0003-4466-9788, Veronese, Simone ORCID: 0000-0002-9555-7252, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Kleiter, Ingo, Basedow‐Rajwich, Birgit ORCID: 0000-0003-0735-9983, Fornari, Arianna ORCID: 0000-0003-4228-5473, Battaglia, M. A., Drulovic, J., Kooij, L., Koops, J., Mensah, J., Meza Murillo, Edwin Roger ORCID: 0000-0001-6065-3546, Milanov, Ivan ORCID: 0000-0002-4522-4070, Milo, Ron ORCID: 0000-0001-8556-2579, Patti, Francesco ORCID: 0000-0002-6923-0846, Pekmezovic, Tatiana ORCID: 0000-0001-7978-1409, Sastre‐Garriga, J., Vosburgh, J., Voltz, Raymond ORCID: 0000-0002-4761-3395, Bayry, J., Oliver, David ORCID: 0000-0001-9302-3225 and Solari, Alessandra ORCID: 0000-0001-9930-7579 (2019). Patient and caregiver involvement in the formulation of guideline questions: findings from the European Academy of Neurology guideline on palliative care of people with severe multiple sclerosis. European Journal of Neurology, 26 (1). pp. 41-50. Wiley. ISSN 1351-5101

Köpke, Sascha ORCID: 0000-0003-4106-4919, Giordano, Andrea ORCID: 0000-0003-4466-9788, Veronese, Simone ORCID: 0000-0002-9555-7252, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Kleiter, I., Basedow-Rajwich, Birgit ORCID: 0000-0003-0735-9983, Fornari, Arianna ORCID: 0000-0003-4228-5473, Battaglia, Mario Alberto ORCID: 0000-0002-8106-8239, Drulovic, Jelena ORCID: 0000-0002-4516-3458, Kooij, Liesbeth, Koops, J., Mens, J., Meza Murillo, Edwin Roger ORCID: 0000-0001-6065-3546, Milanov, Ivan ORCID: 0000-0002-4522-4070, Milo, Ron ORCID: 0000-0001-8556-2579, Patti, Francesco ORCID: 0000-0002-6923-0846, Pekmezovic, Tatiana ORCID: 0000-0001-7978-1409, Sastre-Garriga, Jaume ORCID: 0000-0002-1589-2254, Silber, Eli ORCID: 0000-0002-3972-0780, Vosburgh, J., Voltz, Raymond ORCID: 0000-0002-4761-3395, Bayry, J., Oliver, David ORCID: 0000-0001-9302-3225 and Solari, Alessandra ORCID: 0000-0001-9930-7579 (2019). Patient and caregiver involvement in the formulation of guideline questions: findings from the European Academy of Neurology guideline on palliative care of people with severe multiple sclerosis. European Journal of Neurology, 26 (1). pp. 41-50. Wiley-Blackwell. ISSN 1468-1331

Dillen, Kim ORCID: 0000-0002-0270-3338, Ebke, Markus, Koch, Andreas, Becker, Ingrid ORCID: 0000-0001-5829-3553, Ostgathe, Christoph ORCID: 0000-0003-4449-5036, Voltz, Raymond ORCID: 0000-0002-4761-3395 and Golla, Heidrun ORCID: 0000-0002-4403-630X (2019). Validation of a palliative care outcome measurement tool supplemented by neurological symptoms (HOPE+): Identification of palliative concerns of neurological patients. Palliative Medicine, 33 (9). pp. 1221-1231. SAGE. ISSN 0269-2163

Eggers, Carsten, Dano, Richard, Schill, Juliane, Fink, Gereon R. ORCID: 0000-0002-8230-1856, Timmermann, Lars ORCID: 0000-0002-5301-3580, Voltz, Raymond ORCID: 0000-0002-4761-3395, Golla, Heidrun ORCID: 0000-0002-4403-630X and Lorenzl, Stefan ORCID: 0000-0002-1165-0821 (2018). Access to End-of Life Parkinson's Disease Patients Through Patient-Centered Integrated Healthcare. Front. Neurol., 9. LAUSANNE: FRONTIERS MEDIA SA. ISSN 1664-2295

Kalies, Helen, Schoettmer, Rieke, Simon, Steffen T. ORCID: 0000-0002-6884-1813, Voltz, Raymond ORCID: 0000-0002-4761-3395, Crispin, Alexander and Bausewein, Claudia ORCID: 0000-0002-0958-3041 (2018). Barriers for the implementation of guidelines in palliative care-results from a national survey of professionals. Support. Care Cancer, 26 (6). S. 1943 - 1953. NEW YORK: SPRINGER. ISSN 1433-7339

Karbach, Ute ORCID: 0000-0003-3479-9474, Ansmann, Lena ORCID: 0000-0002-8628-7166, Scholten, Nadine ORCID: 0000-0002-7793-7745, Pfaff, Holger ORCID: 0000-0001-9154-6575, Albus, Christian ORCID: 0000-0002-4033-887X, Jessen, Frank ORCID: 0000-0003-1067-2102, Kuntz, Ludwig ORCID: 0000-0002-4083-4574, Rietz, Christian ORCID: 0000-0002-7057-4937, Schubert, Ingrid ORCID: 0000-0002-2191-1773, Schulz-Nieswandt, Frank ORCID: 0000-0002-9820-417X, Stock, Stephanie ORCID: 0000-0002-1726-9300, Strupp, Julia and Voltz, Raymond ORCID: 0000-0002-4761-3395 (2018). Bericht aus einem laufenden Forschungsprojekt: CoRe-Net, das Kölner Kompetenznetzwerk aus Versorgungspraxis und Versorgungsforschung, und der Value-based Healthcare-Ansatz. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen, 130. pp. 21-26. Elsevier. ISSN 1865-9217

Seibl-Leven, Matthias, von Reeken, Christian, Goldbrunner, Roland, Grau, Stefan ORCID: 0000-0002-9742-527X, Ruge, Maximilian Ingolf, Galldiks, Norbert ORCID: 0000-0002-2485-1796, Dunkl, Veronika ORCID: 0000-0001-6885-7666, Kocher, Martin ORCID: 0000-0002-5674-9227, Voltz, Raymond ORCID: 0000-0002-4761-3395 and Golla, Heidrun ORCID: 0000-0002-4403-630X (2018). Clinical routine assessment of palliative care symptoms and concerns and caregiver burden in glioblastoma patients: an explorative field study. J. Neuro-Oncol., 138 (2). S. 321 - 334. NEW YORK: SPRINGER. ISSN 1573-7373

Kremeike, Kerstin, Galushko, Maren, Frerich, Gerrit ORCID: 0000-0002-1109-0553, Romotzky, Vanessa ORCID: 0000-0002-5765-692X, Hamacher, Stefanie ORCID: 0000-0003-2158-9101, Rodin, Gary ORCID: 0000-0002-6626-6974, Pfaff, Holger ORCID: 0000-0001-9154-6575 and Voltz, Raymond ORCID: 0000-0002-4761-3395 (2018). The DEsire to DIe in Palliative care: Optimization of Management (DEDIPOM) - a study protocol. BMC Palliat. Care, 17. LONDON: BMC. ISSN 1472-684X

Groebe, Bernadette ORCID: 0000-0001-9766-2809, Strupp, Julia ORCID: 0000-0003-3135-2693, Rietz, Christian ORCID: 0000-0002-7057-4937 and Voltz, Raymond ORCID: 0000-0002-4761-3395 (2018). How we talk about Attitudes towards Dying, Death and the Finiteness of Life: A qualitative Study of Experiences and Conditions from the Point of View of Supporters. Z. Gerontol. Geriatr., 36 (8). pp. 697-704. Springer. ISSN 1435-1269

Strupp, Julia ORCID: 0000-0003-3135-2693, Hanke, Gloria, Schippel, Nicolas ORCID: 0000-0001-5612-8482, Pfaff, Holger ORCID: 0000-0001-9154-6575, Karbach, Ute ORCID: 0000-0003-3479-9474, Rietz, Christian ORCID: 0000-0002-7057-4937 and Voltz, Raymond ORCID: 0000-0002-4761-3395 (2018). Last Year of Life Study Cologne (LYOL-C): protocol for a cross-sectional mixed methods study to examine care trajectories and transitions in the last year of life until death. BMJ Open, 8 (4). e021211. BMJ Publishing Group. ISSN 2044-6055

Strupp, Julia ORCID: 0000-0003-3135-2693, Hanke, Gloria, Schippel, Nicolas ORCID: 0000-0001-5612-8482, Pfaff, Holger ORCID: 0000-0001-9154-6575, Karbach, Ute ORCID: 0000-0003-3479-9474, Rietz, Christian ORCID: 0000-0002-7057-4937 and Voltz, Raymond ORCID: 0000-0002-4761-3395 (2018). Last Year of Life Study Cologne (LYOL-C): protocol for a cross-sectional mixed methods study to examine care trajectories and transitions in the last year of life until death. BMJ Open, 8 (4). LONDON: BMJ PUBLISHING GROUP. ISSN 2044-6055

Groebe, Bernadette, Strupp, Julia, Eisenmann, Yvonne, Schmidt, Holger ORCID: 0000-0002-3151-7462, Eisenmann, Anna, Rietz, Christian ORCID: 0000-0002-7057-4937 and Voltz, Raymond ORCID: 0000-0002-4761-3395 (2018). Measuring attitudes towards the dying process: A systematic review of tools. Palliat. Med., 32 (4). S. 815 - 838. LONDON: SAGE PUBLICATIONS LTD. ISSN 1477-030X

Solari, Alessandra ORCID: 0000-0001-9930-7579, Köpke, Sascha ORCID: 0000-0003-4106-4919, Giordano, Andrea ORCID: 0000-0003-4466-9788, Veronese, Simone ORCID: 0000-0002-9555-7252, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Kleiter, Ingo ORCID: 0000-0002-8249-4408, Basedow-Rajwich, Birgit ORCID: 0000-0003-0735-9983, Fornari, Arianna ORCID: 0000-0003-4228-5473, Battaglia, Mario Alberto ORCID: 0000-0002-8106-8239, Drulovic, Jelena ORCID: 0000-0002-4516-3458, Kooij, Liesbeth, Koops, Johan, Mens, John, Meza Murillo, Edwin Roger ORCID: 0000-0001-6065-3546, Milanov, Ivan ORCID: 0000-0002-4522-4070, Milo, Ron ORCID: 0000-0001-8556-2579, Patti, Francesco Paolo ORCID: 0000-0002-7975-2947, Pekmezovic, Tatjana ORCID: 0000-0001-7978-1409, Sastre-Garriga, Jaume ORCID: 0000-0002-1589-2254, Silber, Eli ORCID: 0000-0002-3972-0780, Vosburgh, Janine, Voltz, Raymond ORCID: 0000-0002-4761-3395, Bay, Jette, Oliver, David J. ORCID: 0000-0001-9302-3225 and Solari, Alessandra ORCID: 0000-0001-9930-7579 (2018). Patient and caregiver involvement in formulation of guideline questions: Findings from the EAN Guideline on Palliative Care of People with Severe Multiple Sclerosis. European Journal of Neurology, 26 (1). pp. 41-50. Wiley-Blackwell. ISSN 1351-5101

Ebke, Markus ORCID: 0000-0002-4575-3482, Koch, Andreas, Dillen, Kim ORCID: 0000-0002-0270-3338, Becker, Ingrid ORCID: 0000-0001-5829-3553, Voltz, Raymond ORCID: 0000-0002-4761-3395 and Golia, Heidrun (2018). The Surprise Question in Neurorehabilitation-Prognosis Estimation by Neurologist and Palliative Care Physician; a Longitudinal, Prospective, Observational Study. Front. Neurol., 9. LAUSANNE: FRONTIERS MEDIA SA. ISSN 1664-2295