Universität zu Köln

Journal Article

Peper, Julia ORCID: 0000-0002-0654-9972, Köpke, Sascha ORCID: 0000-0003-4106-4919, Solari, Alessandra ORCID: 0000-0001-9930-7579, Giordano, Andrea ORCID: 0000-0003-4466-9788, Gold, Stefan M. ORCID: 0000-0001-5188-4799, Hellwig, Kerstin ORCID: 0000-0003-4467-9011, Steinberg, Lea ORCID: 0000-0002-3227-9638, Steckelberg, Anke, Heesen, Christoph ORCID: 0000-0001-8131-9467 and Rahn, Anne Christin ORCID: 0000-0002-9051-3621 (2023). Knowledge and worries on motherhood choice in multiple sclerosis – a cross-sectional study on patient-reported outcome measures. Multiple Sclerosis and Related Disorders, 76. p. 104789. Elsevier. ISSN 2211-0348

Schubert, Charlotte ORCID: 0000-0002-2967-4290, Steinberg, Lea ORCID: 0000-0002-3227-9638, Peper, Julia ORCID: 0000-0002-0654-9972, Ramien, Caren ORCID: 0000-0002-3949-1359, Hellwig, Kerstin ORCID: 0000-0003-4467-9011, Köpke, Sascha ORCID: 0000-0003-4106-4919, Solari, Alessandra ORCID: 0000-0001-9930-7579, Giordano, Andrea ORCID: 0000-0003-4466-9788, Gold, Stefan M. ORCID: 0000-0001-5188-4799, Friede, Tim ORCID: 0000-0001-5347-7441, Heesen, Christoph ORCID: 0000-0001-8131-9467 and Rahn, Anne Christin ORCID: 0000-0002-9051-3621 (2023). Postpartum relapse risk in multiple sclerosis: a systematic review and meta-analysis. Journal of Neurology, Neurosurgery & Psychiatry, 94 (9). pp. 718-725. BMJ Publishing Group. ISSN 0022-3050

Schneider, Anne ORCID: 0000-0001-8005-9755, Fasshauer, E., Scheiderbauer, Jutta, Warnke, Clemens ORCID: 0000-0002-3510-9255, Köpke, Sascha ORCID: 0000-0003-4106-4919, Kasper, Jürgen, Toussaint, M., Temmes, Herbert, Hemmer, Bernhard ORCID: 0000-0001-5985-6784, Schiffmann, I, Rahn, Anne Christin ORCID: 0000-0002-9051-3621 and Heesen, Christoph ORCID: 0000-0001-8131-9467 (2022). Development and evaluation of evidence-based patient information handbooks about multiple sclerosis immunotherapies. Multiple Sclerosis and Related Disorders, 60. p. 103728. Elsevier. ISSN 2211-0348

Lehnert, Thomas, Röver, Christian ORCID: 0000-0002-6911-698X, Köpke, Sascha ORCID: 0000-0003-4106-4919, Rio, Jordi ORCID: 0000-0003-4546-7627, Chard, Declan ORCID: 0000-0003-3076-2682, Fittipaldo, Andrea V. ORCID: 0000-0002-2832-9241, Friede, Tim ORCID: 0000-0001-5347-7441, Heesen, Christoph ORCID: 0000-0001-8131-9467 and Rahn, Anne C. ORCID: 0000-0002-9051-3621 (2022). Immunotherapy for people with clinically isolated syndrome or relapsing-remitting multiple sclerosis: treatment response by demographic, clinical, and biomarker subgroups (PROMISE)—a systematic review protocol. Systematic Reviews, 11 (1). BMC. ISSN 2046-4053

Steinberg, Lea ORCID: 0000-0002-3227-9638, Peper, Julia ORCID: 0000-0002-0654-9972, Köpke, Sascha ORCID: 0000-0003-4106-4919, Solari, Alessandra ORCID: 0000-0001-9930-7579, Giordano, Andrea ORCID: 0000-0003-4466-9788, Gold, Stefan M. ORCID: 0000-0001-5188-4799, Hellwig, Kerstin ORCID: 0000-0003-4467-9011, Heesen, Christoph ORCID: 0000-0001-8131-9467 and Rahn, Anne Christin ORCID: 0000-0002-9051-3621 (2022). Motherhood choice in multiple sclerosis (MoMS) development and piloting of patient-reported outcome measures. Multiple Sclerosis and Related Disorders, 63. p. 103831. Elsevier. ISSN 2211-0348

Artmann, Anna ORCID: 0000-0001-5845-3078, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Köpke, Sascha ORCID: 0000-0003-4106-4919, Thomalla, Götz ORCID: 0000-0002-4785-1449, Heesen, Christoph ORCID: 0000-0001-8131-9467 and Alegiani, Anna Christina ORCID: 0000-0001-8216-6220 (2022). Risk communication in acute stroke patients – from qualitative data to a pilot randomised controlled trial. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen, 169. pp. 19-27. Elsevier. ISSN 1865-9217

Krause, Nicole ORCID: 0000-0001-6681-7054, Riemann-Lorenz, Karin ORCID: 0000-0002-0779-2640, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Pöttgen, Jana ORCID: 0000-0002-6665-2154, Köpke, Sascha ORCID: 0000-0003-4106-4919, Meyer, Björn, Thale, Frithjof ORCID: 0000-0002-2721-1620, Temmes, Herbert, van de Loo, Markus, Gold, Stefan M. ORCID: 0000-0001-5188-4799 and Heesen, Christoph ORCID: 0000-0001-8131-9467 (2022). ‘That would have been the perfect thing after diagnosis’: development of a digital lifestyle management application in multiple sclerosis. Therapeutic Advances in Neurological Disorders, 15. p. 175628642211187. SAGE. ISSN 1756-2864

Wenzel, Lisa ORCID: 0000-0002-6798-0766, Heesen, Christoph ORCID: 0000-0001-8131-9467, Peper, Julia ORCID: 0000-0002-0654-9972, Grentzenberg, Kristina, Faßhauer, Edeltraud, Scheiderbauer, Jutta, Thale, Frithjof ORCID: 0000-0002-2721-1620, Meyer, Björn, Köpke, Sascha ORCID: 0000-0003-4106-4919 and Rahn, Anne Christin ORCID: 0000-0002-9051-3621 (2022). An interactive web-based programme on relapse management for people with multiple sclerosis (POWER@MS2) - development, feasibility, and pilot testing of a complex intervention. Frontiers in Neurology, 13. Frontiers Research Foundation. ISSN 1664-2295

Rahn, Anne C. ORCID: 0000-0002-9051-3621, Riemann-Lorenz, Karin ORCID: 0000-0002-0779-2640, Alegiani, Anna Christina ORCID: 0000-0001-8216-6220, Pust, Gesa E. A., van de Roemer, Adrianus, Schmitz, Leonie, Vettorazzi, Eik ORCID: 0000-0002-3737-6402, Köpke, Sascha ORCID: 0000-0003-4106-4919 and Heesen, Christoph ORCID: 0000-0001-8131-9467 (2021). Comprehension of confidence intervals in audio-visual patient information materials for people with multiple sclerosis (COCO-MS): A web-based randomised controlled, parallel group trial. Patient Education and Counseling, 104 (5). pp. 1132-1139. Elsevier. ISSN 0738-3991

Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Wenzel, Lisa ORCID: 0000-0002-6798-0766, Icks, Andrea ORCID: 0000-0002-4882-969X, Stahmann, Alexander ORCID: 0000-0001-5308-105X, Scheiderbauer, Jutta, Grentzenberg, Kristina, Vomhof, Markus ORCID: 0000-0002-2714-6371, Montalbo, Joseph, Friede, Tim ORCID: 0000-0001-5347-7441, Heesen, Christoph ORCID: 0000-0001-8131-9467 and Köpke, Sascha ORCID: 0000-0003-4106-4919 (2021). Correction to: Development and evaluation of an interactive web-based decision-making programme on relapse management for people with multiple sclerosis (POWER@MS2)—study protocol for a randomised controlled trial. Trials, 22 (1). p. 196. BMC. ISSN 1745-6215

Haker, Michel, Heesen, Christoph ORCID: 0000-0001-8131-9467, Wenzel, L., Köpke, Sascha ORCID: 0000-0003-4106-4919, Rahn, Anne Christin ORCID: 0000-0002-9051-3621 and Kasper, Jürgen (2021). Decision-making about corticosteroids in relapses of multiple sclerosis – development of a questionnaire based on the theory of planned behaviour. Multiple Sclerosis and Related Disorders, 55. p. 103182. Elsevier. ISSN 2211-0348

Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Wenzel, Lisa ORCID: 0000-0002-6798-0766, Icks, Andrea ORCID: 0000-0002-4882-969X, Stahmann, Alexander ORCID: 0000-0001-5308-105X, Scheiderbauer, Jutta, Grentzenberg, Kristina, Vomhof, Markus ORCID: 0000-0002-2714-6371, Montalbo, Joseph, Friede, Tim ORCID: 0000-0001-5347-7441, Heesen, Christoph ORCID: 0000-0001-8131-9467 and Köpke, Sascha ORCID: 0000-0003-4106-4919 (2021). Development and evaluation of an interactive web-based decision-making programme on relapse management for people with multiple sclerosis (POWER@MS2)—study protocol for a randomised controlled trial. Trials, 22 (1). BMC. ISSN 1745-6215

Wenzel, Lisa ORCID: 0000-0002-4862-6008, Heesen, Christoph ORCID: 0000-0001-8131-9467, Scheiderbauer, Jutta, van de Loo, Markus, Köpke, Sascha ORCID: 0000-0003-4106-4919 and Rahn, Anne Christin ORCID: 0000-0002-9051-3621 (2021). Evaluation of an interactive web-based programme on relapse management for people with multiple sclerosis (POWER@MS2): study protocol for a process evaluation accompanying a randomised controlled trial. BMJ Open, 11 (10). e046874. BMJ PUBLISHING GROUP. ISSN 2044-6055

Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Jull, Janet ORCID: 0000-0002-0404-4313, Boland, Laura ORCID: 0000-0001-8680-9844, Finderup, Jeanette ORCID: 0000-0003-2646-0227, Loiselle, Marie-Chantal ORCID: 0000-0002-5293-6666, Smith, Maureen ORCID: 0000-0003-4370-000X, Köpke, Sascha ORCID: 0000-0003-4106-4919 and Stacey, Dawn ORCID: 0000-0002-2681-741X (2021). Guidance and/or Decision Coaching with Patient Decision Aids: Scoping Reviews to Inform the International Patient Decision Aid Standards (IPDAS). Medical Decision Making, 41 (7). pp. 938-953. SAGE. ISSN 0272-989X

Barabasch, Anna ORCID: 0000-0001-5301-5714, Riemann-Lorenz, Karin ORCID: 0000-0002-0779-2640, Kofahl, Christopher ORCID: 0000-0002-0503-3077, Scheiderbauer, Jutta, Eklund, Desiree, Kleiter, Ingo ORCID: 0000-0002-8249-4408, Kasper, Jürgen, Köpke, Sascha ORCID: 0000-0003-4106-4919, Lezius, Susanne ORCID: 0000-0002-4832-4333, Zapf, Antonia ORCID: 0000-0002-8467-0508, Rahn, Anne Christin ORCID: 0000-0002-9051-3621 and Heesen, Christoph ORCID: 0000-0001-8131-9467 (2021). Impact of a multimedia website with patient experiences of multiple sclerosis (PExMS) on immunotherapy decision-making: study protocol for a pilot randomised controlled trial in a mixed-methods design. Pilot and Feasibility Studies, 7 (1). BMC. ISSN 2055-5784

Krause, Nicole ORCID: 0000-0001-6681-7054, Riemann-Lorenz, Karin ORCID: 0000-0002-0779-2640, Steffen, Tanja, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Pöttgen, Jana ORCID: 0000-0002-6665-2154, Stellmann, Jan-Patrick ORCID: 0000-0003-2565-2833, Köpke, Sascha ORCID: 0000-0003-4106-4919, Friede, Tim ORCID: 0000-0001-5347-7441, Icks, Andrea ORCID: 0000-0002-4882-969X, Vomhof, Markus ORCID: 0000-0002-2714-6371, Temmes, Herbert, van de Loo, Markus, Gold, Stefan M ORCID: 0000-0001-5188-4799 and Heesen, Christoph ORCID: 0000-0001-8131-9467 (2021). Study protocol for a randomised controlled trial of a web-based behavioural lifestyle programme for emPOWERment in early Multiple Sclerosis (POWER@MS1). BMJ Open, 11 (2). e041720. BMJ PUBLISHING GROUP. ISSN 2044-6055

Solari, Alessandra ORCID: 0000-0001-9930-7579, Giordano, Andrea ORCID: 0000-0003-4466-9788, Sastre-Garriga, Jaume, Köpke, Sascha ORCID: 0000-0003-4106-4919, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Kleiter, Ingo ORCID: 0000-0002-8249-4408, Aleksovska, Katina ORCID: 0000-0002-2372-4453, Battaglia, Mario A. ORCID: 0000-0002-8106-8239, Bay, Jette, Copetti, Massimiliano ORCID: 0000-0002-7960-5947, Drulovic, Jelena ORCID: 0000-0002-4516-3458, Kooij, Liesbeth, Mens, John, Murillo, Edwin R. Meza ORCID: 0000-0001-6065-3546, Milanov, Ivan ORCID: 0000-0002-4522-4070, Milo, Ron ORCID: 0000-0001-8556-2579, Pekmezovic, Tatiana ORCID: 0000-0001-7978-1409, Vosburgh, Janine, Silber, Eli ORCID: 0000-0002-3972-0780, Veronese, Simone ORCID: 0000-0002-9555-7252, Patti, Francesco ORCID: 0000-0002-6923-0846, Voltz, Raymond ORCID: 0000-0002-4761-3395 and Oliver, David J. ORCID: 0000-0001-9302-3225 (2020). EAN Guideline on Palliative Care of People with Severe, Progressive Multiple Sclerosis. Journal of Palliative Medicine, 23 (11). pp. 1426-1443. Liebert. ISSN 1096-6218

Solari, Alessandra ORCID: 0000-0001-9930-7579, Giordano, Andrea ORCID: 0000-0003-4466-9788, Sastre‐Garriga, J., Köpke, Sascha ORCID: 0000-0003-4106-4919, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Kleiter, I., Aleksovska, K., Battaglia, M. A., Bay, J., Copetti, M., Drulovic, J., Kooij, L., Mens, J., Meza Murillo, E. R. ORCID: 0000-0001-6065-3546, Milanov, I., Milo, R., Pekmezovic, T., Vosburgh, J., Silber, E., Veronese, Simone ORCID: 0000-0002-9555-7252, Patti, Francesco ORCID: 0000-0002-6923-0846, Voltz, Raymond ORCID: 0000-0002-4761-3395 and Oliver, David ORCID: 0000-0001-9302-3225 (2020). EAN guideline on palliative care of people with severe, progressive multiple sclerosis. European Journal of Neurology, 27 (8). pp. 1510-1529. Wiley-Blackwell. ISSN 1351-5101

Pust, Gesa E.A., Untiedt, Benthe, Randerath, Jennifer ORCID: 0000-0002-0794-5571, Barabasch, Anna, Köpke, Sascha ORCID: 0000-0003-4106-4919, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Hansen, Hilke and Heesen, Christoph ORCID: 0000-0001-8131-9467 (2020). Exploring Adherence to First-Line and Second-Line Immunotherapies in Multiple Sclerosis. International Journal of MS Care, 22 (5). pp. 219-225. ISSN 1537-2073

Alegiani, Anna Christina ORCID: 0000-0001-8216-6220, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Steckelberg, Anke, Thomalla, Götz ORCID: 0000-0002-4785-1449, Heesen, Christoph ORCID: 0000-0001-8131-9467 and Köpke, Sascha ORCID: 0000-0003-4106-4919 (2020). Quality of Stroke Patient Information Applied in Randomized Controlled Trials—Literature Review. Frontiers in Neurology, 11. Frontiers Research Foundation. ISSN 1664-2295

Köpke, Sascha ORCID: 0000-0003-4106-4919, Giordano, Andrea ORCID: 0000-0003-4466-9788, Veronese, Simone ORCID: 0000-0002-9555-7252, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Kleiter, Ingo, Basedow‐Rajwich, Birgit ORCID: 0000-0003-0735-9983, Fornari, Arianna ORCID: 0000-0003-4228-5473, Battaglia, M. A., Drulovic, J., Kooij, L., Koops, J., Mensah, J., Meza Murillo, Edwin Roger ORCID: 0000-0001-6065-3546, Milanov, Ivan ORCID: 0000-0002-4522-4070, Milo, Ron ORCID: 0000-0001-8556-2579, Patti, Francesco ORCID: 0000-0002-6923-0846, Pekmezovic, Tatiana ORCID: 0000-0001-7978-1409, Sastre‐Garriga, J., Vosburgh, J., Voltz, Raymond ORCID: 0000-0002-4761-3395, Bayry, J., Oliver, David ORCID: 0000-0001-9302-3225 and Solari, Alessandra ORCID: 0000-0001-9930-7579 (2019). Patient and caregiver involvement in the formulation of guideline questions: findings from the European Academy of Neurology guideline on palliative care of people with severe multiple sclerosis. European Journal of Neurology, 26 (1). pp. 41-50. Wiley. ISSN 1351-5101

Köpke, Sascha ORCID: 0000-0003-4106-4919, Giordano, Andrea ORCID: 0000-0003-4466-9788, Veronese, Simone ORCID: 0000-0002-9555-7252, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Kleiter, I., Basedow-Rajwich, Birgit ORCID: 0000-0003-0735-9983, Fornari, Arianna ORCID: 0000-0003-4228-5473, Battaglia, Mario Alberto ORCID: 0000-0002-8106-8239, Drulovic, Jelena ORCID: 0000-0002-4516-3458, Kooij, Liesbeth, Koops, J., Mens, J., Meza Murillo, Edwin Roger ORCID: 0000-0001-6065-3546, Milanov, Ivan ORCID: 0000-0002-4522-4070, Milo, Ron ORCID: 0000-0001-8556-2579, Patti, Francesco ORCID: 0000-0002-6923-0846, Pekmezovic, Tatiana ORCID: 0000-0001-7978-1409, Sastre-Garriga, Jaume ORCID: 0000-0002-1589-2254, Silber, Eli ORCID: 0000-0002-3972-0780, Vosburgh, J., Voltz, Raymond ORCID: 0000-0002-4761-3395, Bayry, J., Oliver, David ORCID: 0000-0001-9302-3225 and Solari, Alessandra ORCID: 0000-0001-9930-7579 (2019). Patient and caregiver involvement in the formulation of guideline questions: findings from the European Academy of Neurology guideline on palliative care of people with severe multiple sclerosis. European Journal of Neurology, 26 (1). pp. 41-50. Wiley-Blackwell. ISSN 1468-1331

Alegiani, Anna Christina ORCID: 0000-0001-8216-6220, Albrecht, Sindy ORCID: 0000-0002-4777-6186, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Köpke, Sascha ORCID: 0000-0003-4106-4919, Thomalla, Götz ORCID: 0000-0002-4785-1449 and Heesen, Christoph ORCID: 0000-0001-8131-9467 (2019). Reasons for delayed admission after stroke: results of a qualitative and quantitative survey. Patient Preference and Adherence, 13. pp. 739-747. Dovepress. ISSN 1177-889X

Solari, Alessandra ORCID: 0000-0001-9930-7579, Köpke, Sascha ORCID: 0000-0003-4106-4919, Giordano, Andrea ORCID: 0000-0003-4466-9788, Veronese, Simone ORCID: 0000-0002-9555-7252, Rahn, Anne Christin ORCID: 0000-0002-9051-3621, Kleiter, Ingo ORCID: 0000-0002-8249-4408, Basedow-Rajwich, Birgit ORCID: 0000-0003-0735-9983, Fornari, Arianna ORCID: 0000-0003-4228-5473, Battaglia, Mario Alberto ORCID: 0000-0002-8106-8239, Drulovic, Jelena ORCID: 0000-0002-4516-3458, Kooij, Liesbeth, Koops, Johan, Mens, John, Meza Murillo, Edwin Roger ORCID: 0000-0001-6065-3546, Milanov, Ivan ORCID: 0000-0002-4522-4070, Milo, Ron ORCID: 0000-0001-8556-2579, Patti, Francesco Paolo ORCID: 0000-0002-7975-2947, Pekmezovic, Tatjana ORCID: 0000-0001-7978-1409, Sastre-Garriga, Jaume ORCID: 0000-0002-1589-2254, Silber, Eli ORCID: 0000-0002-3972-0780, Vosburgh, Janine, Voltz, Raymond ORCID: 0000-0002-4761-3395, Bay, Jette, Oliver, David J. ORCID: 0000-0001-9302-3225 and Solari, Alessandra ORCID: 0000-0001-9930-7579 (2018). Patient and caregiver involvement in formulation of guideline questions: Findings from the EAN Guideline on Palliative Care of People with Severe Multiple Sclerosis. European Journal of Neurology, 26 (1). pp. 41-50. Wiley-Blackwell. ISSN 1351-5101