Hamm, Isabel 
ORCID: 0000-0001-8593-1549, Dittmer, Kerstin ORCID: 0000-0003-3390-1377, Vitinius, Frank ORCID: 0000-0002-4685-4189, Reinert, David ORCID: 0009-0002-6414-3118, Hoemberg, Marc ORCID: 0000-0002-6928-7973, Kamm-Thonwart, Remo, Misgeld, Rainer and Krieger, Theresia ORCID: 0000-0002-7414-7318
(2025).
Developing multi-perspective practice-based evidence theses for breaking bad news in the German pediatric oncology: A participatory group Delphi study.
PEC Innovation, 7.
pp. 1-10.
Elsevier.
ISSN 2772-6282
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Abstract
[Artikel-Nr. 100413] Objectives: The study aimed to (1) gain a comprehensive, multi-perspective understanding of the preparation, transmission and follow-up of Breaking Bad News (BBN) in pediatric oncology, and (2) to develop and weigh recommendations for BBN in pediatric oncology. Methods: A mixed-methods Participatory Group Delphi (PGD) study was conducted to develop recommendations for the preparation, transmission, and follow-up of BBN. Practice-based evidence (PBE) was collected from four groups (N = 14 organizations) with different BBN experiences: (1) patient and family representatives, (2) healthcare providers, (3) psychosocial supporters, and (4) health services researchers. Results: The PGD process (16 interviews, three focus group discussions and two surveys) resulted in 166 rec- ommendations (preparation: 55; transmission: 45; follow-up: 66). Conclusion: The PGD approach provided a structured framework for collecting PBE and developing, refining and consolidating recommendations on BBN in pediatric oncology. Involving all affected by BBN was crucial for addressing the complexity of BBN in the recommendations. The mixed-methods design enhanced the reliability and practical applicability of the recommendations. Innovation: To our knowledge, no prior research in pediatric oncology has systematically integrated existing PBE into a structured set of recommendations in Germany. This study introduces a novel PGD process in this field in Germany, incorporating three key innovations: (1) a participatory methodology ensuring active stakeholder engagement, (2) a uniquely diverse expert panel including those affected by pediatric cancer, and (3) a sys- tematic, iterative recommendation development approach rooted in PBE. This methodology results in a Delphi process that diverges significantly from classical approaches, offering a collaborative and structured framework for evidence synthesis.
| Item Type: | Article |
| Creators: | Creators Email ORCID ORCID Put Code Kamm-Thonwart, Remo UNSPECIFIED UNSPECIFIED UNSPECIFIED Misgeld, Rainer UNSPECIFIED UNSPECIFIED UNSPECIFIED |
| URN: | urn:nbn:de:hbz:38-806006 |
| Identification Number: | 10.1016/j.pecinn.2025.100413 |
| Journal or Publication Title: | PEC Innovation |
| Volume: | 7 |
| Page Range: | pp. 1-10 |
| Number of Pages: | 1 |
| Date: | December 2025 |
| Publisher: | Elsevier |
| ISSN: | 2772-6282 |
| Language: | English |
| Faculty: | Faculty of Medicine |
| Divisions: | Center for Gender Studies in Cologne Faculty of Medicine > Kinder- und Jugendmedizin > Klinik und Poliklinik für Kinder- und Jugendmedizin Faculty of Medicine > Psychosomatik und Psychotherapie > Klinik und Poliklinik für Psychosomatik und Psychotherapie |
| Subjects: | Psychology Medical sciences Medicine |
| Uncontrolled Keywords: | Keywords Language Pediatric oncology ; Participatory group Delphi ; Mixed-methods ; Participation ; Breaking bad news ; Triadic communication English |
| ['eprint_fieldname_oa_funders' not defined]: | Publikationsfonds UzK |
| Refereed: | Yes |
| URI: | http://kups.ub.uni-koeln.de/id/eprint/80600 |
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