Rodriguez-Gomez, Octavio, Rodrigo, Adrian, Iradier, Fatima, Santos-Santos, Miguel A., Hundemer, Hans, Ciudin, Andreea ORCID: 0000-0001-5622-0203, Sannemann, Lena, Zwan, Marissa, Glaysher, Bridget, Wimo, Anders, Bonn, Jaka, Johansson, Gunilla, Rodriguez, Isabel, Alegret, Montse, Gove, Dianne, Pino, Susana, Trigueros, Paloma, Kivipelto, Miia, Mathews, Brandy, Ciudad, Antonio, Ferreira, Daniel ORCID: 0000-0001-9522-4338, Bintener, Christophe, Gurruchaga, Miren, Westman, Eric ORCID: 0000-0002-3115-2977, Belger, Mark, Valero, Sergi ORCID: 0000-0002-6599-948X, Maguire, Peggy, Krivec, David, Kramberger, Milica, Simo, Rafael, Garro, Inmaculada Perez, Visser, Pieter Jelle ORCID: 0000-0001-8008-9727, Dumas, Annette, Georges, Jean, Jessen, Frank, Winblad, Bengt, Shering, Craig, Stewart, Neil, Campo, Laura and Boada, Merece (2019). The MOPEAD project: Advancing patient engagement for the detection of hidden undiagnosed cases of Alzheimer's disease in the community. Alzheimers. Dement., 15 (6). S. 828 - 840. NEW YORK: ELSEVIER SCIENCE INC. ISSN 1552-5279

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Abstract

In most, if not all health systems, dementia is underdiagnosed, and when diagnosis occurs, it is typically at a relatively late stage in the disease process despite mounting evidence showing that a timely diagnosis would result in numerous benefits for patients, families, and society. Moving toward earlier diagnoses in Alzheimer's disease (AD) requires a conscientious and collective effort to implement a global strategy addressing the multiple causes hindering patient engagement at different levels of society. This article describes the design of the Models of Patient Engagement for Alzheimer's Disease project, an ongoing EU-funded public-private multinational initiative that will compare four innovative patient engagement strategies across five European countries regarding their ability to identify individuals with prodromal AD and mild AD dementia, which are hidden in their communities and traditionally not found in the typical memory clinic setting. The strategies include an online AD citizen science platform, an open house initiative at the memory clinics, and patient engagement at primary care and diabetologist clinics. (C) 2019 The Authors. Published by Elsevier Inc. on behalf of the Alzheimer's Association. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Rodriguez-Gomez, OctavioUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Rodrigo, AdrianUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Iradier, FatimaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Santos-Santos, Miguel A.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Hundemer, HansUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ciudin, AndreeaUNSPECIFIEDorcid.org/0000-0001-5622-0203UNSPECIFIED
Sannemann, LenaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Zwan, MarissaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Glaysher, BridgetUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Wimo, AndersUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Bonn, JakaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Johansson, GunillaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Rodriguez, IsabelUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Alegret, MontseUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Gove, DianneUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Pino, SusanaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Trigueros, PalomaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kivipelto, MiiaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Mathews, BrandyUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ciudad, AntonioUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ferreira, DanielUNSPECIFIEDorcid.org/0000-0001-9522-4338UNSPECIFIED
Bintener, ChristopheUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Gurruchaga, MirenUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Westman, EricUNSPECIFIEDorcid.org/0000-0002-3115-2977UNSPECIFIED
Belger, MarkUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Valero, SergiUNSPECIFIEDorcid.org/0000-0002-6599-948XUNSPECIFIED
Maguire, PeggyUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Krivec, DavidUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kramberger, MilicaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Simo, RafaelUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Garro, Inmaculada PerezUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Visser, Pieter JelleUNSPECIFIEDorcid.org/0000-0001-8008-9727UNSPECIFIED
Dumas, AnnetteUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Georges, JeanUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Jessen, FrankUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Winblad, BengtUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Shering, CraigUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Stewart, NeilUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Campo, LauraUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Boada, MereceUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-146771
DOI: 10.1016/j.jalz.2019.02.003
Journal or Publication Title: Alzheimers. Dement.
Volume: 15
Number: 6
Page Range: S. 828 - 840
Date: 2019
Publisher: ELSEVIER SCIENCE INC
Place of Publication: NEW YORK
ISSN: 1552-5279
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
COGNITIVE IMPAIRMENT; RISK SCORE; DEMENTIA RISK; OLDER-ADULTS; PREDICTION; DIAGNOSIS; CARE; DECLINE; EUROPEMultiple languages
Clinical NeurologyMultiple languages
Refereed: Yes
URI: http://kups.ub.uni-koeln.de/id/eprint/14677

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