Universität zu Köln

Romotzky, Vanessa ORCID: 0000-0002-5765-692X, Strupp, Julia ORCID: 0000-0003-3135-2693, Hayn, Alexander ORCID: 0000-0002-5385-454X, Ruefer, Jens Ulrich, Gruemmer, Judith and Voltz, Raymond ORCID: 0000-0002-4761-3395 (2019). All of a sudden, a lot less still makes it worthwhile to be alive: Palliative care patients' views on life. Palliat. Support Care, 17 (2). S. 214 - 221. NEW YORK: CAMBRIDGE UNIV PRESS. ISSN 1478-9523

Full text not available from this repository.

Abstract

Objective We aimed to elucidate the views on life as narrated by patients in palliative care (PC) to find out what patients deem to be essential in their life, whether something has changed concerning their view of life in light of the disease, and whether interviewees would like to give others something to take with them. Method Data were collected from narrative audio and video interviews with 18 inpatients in a specialized PC unit. Interviews were recorded and transcribed verbatim and analyzed using qualitative content analysis applying MAXQDA software. CDs and DVDs with recorded interviews were provided to patients. Result Eighteen interviews were analyzed: 11 audio and 7 video recordings. The age range was 41-80 years. Patients reported on changes in their views on life. Despite it being a complex and painful process, patients still gave examples of benefits experienced during their illness trajectory. Patients identified resources and coping strategies such as meaningful contacts with close others and mindfulness. Shifts have occurred in terms of taking more time for themselves, enjoying the moment, being more calm, and spending more time with family and friends. What patients wanted to pass on to others was to pay attention to the needs of both the self and the others, shape your life individually, confront yourself early with issues of death and dying, and care for your fellow human beings. Patients and relatives valued the opportunity to keep their interview as a CD/DVD. Significance of results. Results support the idea that many people facing terminal illness continue to focus on living and remain within their biographies and the contexts of their lives, even if their functional status declines. Patients and relatives appreciated that interviews were provided as kind of a legacy. Yet, more robust research is needed to decide whether such interviews yield any therapeutic effect.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Romotzky, Vanessa UNSPECIFIED orcid.org/0000-0002-5765-692X UNSPECIFIED Strupp, Julia UNSPECIFIED orcid.org/0000-0003-3135-2693 UNSPECIFIED Hayn, Alexander UNSPECIFIED orcid.org/0000-0002-5385-454X UNSPECIFIED Ruefer, Jens Ulrich UNSPECIFIED UNSPECIFIED UNSPECIFIED Gruemmer, Judith UNSPECIFIED UNSPECIFIED UNSPECIFIED Voltz, Raymond UNSPECIFIED orcid.org/0000-0002-4761-3395 UNSPECIFIED
URN:	urn:nbn:de:hbz:38-152296
DOI:	10.1017/S1478951518000081
Journal or Publication Title:	Palliat. Support Care
Volume:	17
Number:	2
Page Range:	S. 214 - 221
Date:	2019
Publisher:	CAMBRIDGE UNIV PRESS
Place of Publication:	NEW YORK
ISSN:	1478-9523
Language:	English
Faculty:	Faculty of Medicine
Divisions:	Faculty of Medicine > Sonstiges > Zentrum für Versorgungsforschung Köln
Subjects:	Medical sciences Medicine
Uncontrolled Keywords:	Keywords Language POSTTRAUMATIC GROWTH; CANCER-PATIENTS; BREAST-CANCER; EXPERIENCE; ILLNESS; PERCEPTIONS; SURVIVORS; FAMILY; END Multiple languages Health Policy & Services Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/15229