Universität zu Köln

Schara, U., Fink, G. R. and von Moers, A. (2018). Transition from neuropediatrics to neurology in neuromuscular diseases. Nervenarzt, 89 (10). S. 1123 - 1131. NEW YORK: SPRINGER. ISSN 1433-0407

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Abstract

Background. Neuromuscular diseases in childhood, adolescence and adulthood are rare or very rare diseases and for many of them the prevalence and incidence are unknown. Causal therapies are currently used for individual disease entities only. Nevertheless, new genetic methods, abetter understanding of the pathophysiology and multidisciplinary treatment concepts help to improve patient life expectancy and quality of life. As aresult, more and more patients with an early disease onset reach adulthood and further care in adult medicine is necessary. This imposes new challenges particularly on neurology and the requirements for interdisciplinary cooperation in adult medicine are increased. Objective. How can transition be made meaningful? Where do structural and content problems stand out? Material and method. Using the example of Duchenne muscular dystrophy, the content and structural requirements for transition are presented and important aspects and possible problems are pointed out. Conclusion. The transition process is complex and requires time and personnel resources. If carried out sensibly, it can lead to abetter and more efficient care of patients in the long term and thus can also become economically more effective.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Schara, U. UNSPECIFIED UNSPECIFIED UNSPECIFIED Fink, G. R. UNSPECIFIED UNSPECIFIED UNSPECIFIED von Moers, A. UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-170437
DOI:	10.1007/s00115-018-0585-2
Journal or Publication Title:	Nervenarzt
Volume:	89
Number:	10
Page Range:	S. 1123 - 1131
Date:	2018
Publisher:	SPRINGER
Place of Publication:	NEW YORK
ISSN:	1433-0407
Language:	German
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language DUCHENNE MUSCULAR-DYSTROPHY; HEALTH-CARE; ADOLESCENTS; MANAGEMENT; DIAGNOSIS; ADULTS; MODELS Multiple languages Clinical Neurology; Psychiatry Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/17043