Seidel, Danila ORCID: 0000-0003-4388-3117, Graeff, Luisa A. Duran, Vehreschild, Maria J. G. T., Wisplinghoff, Hilmar, Ziegler, Maren, Vehreschild, J. Janne, Liss, Blasius, Hamprecht, Axel ORCID: 0000-0003-1449-5780, Koehler, Philipp ORCID: 0000-0002-7386-7495, Racil, Zdenek, Klimko, Nikolay, Sheppard, Donald C., Herbrecht, Raoul ORCID: 0000-0002-9381-4876, Chowdhary, Anuradha and Cornely, Oliver A. (2017). FungiScope (TM) - Global Emerging Fungal Infection Registry. Mycoses, 60 (8). S. 508 - 517. HOBOKEN: WILEY. ISSN 1439-0507

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Abstract

Rare invasive fungal diseases (IFD) are challenging for the treating physicians because of their unspecific clinical presentation, as well as the lack of standardised diagnostic and effective treatment strategies. Late onset of treatment and inappropriate medication is associated with high mortality, thus, urging the need for a better understanding of these diseases. The purpose of FungiScope (TM) is to continuously collect clinical information and specimens to improve the knowledge on epidemiology and eventually improve patient management of these orphan diseases. FungiScope (TM) was founded in 2003, and today, collaborators from 66 countries support the registry. So far, clinical data of 794 cases have been entered using a web-based approach. Within the growing network of experts, new collaborations developed, leading to several publications of comprehensive analyses of patient subgroups identified from the registry. Data extracted from FungiScope (TM) have also been used as the sole control group for the approval of a new antifungal drug. Due to the rarity of these diseases, a global registry is an appropriate method of pooling the scarce and scattered information. Joining efforts across medical specialities and geographical borders is key for researching rare IFD. Here, we describe the structure and management of the FungiScope (TM) registry.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Seidel, DanilaUNSPECIFIEDorcid.org/0000-0003-4388-3117UNSPECIFIED
Graeff, Luisa A. DuranUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Vehreschild, Maria J. G. T.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Wisplinghoff, HilmarUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ziegler, MarenUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Vehreschild, J. JanneUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Liss, BlasiusUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Hamprecht, AxelUNSPECIFIEDorcid.org/0000-0003-1449-5780UNSPECIFIED
Koehler, PhilippUNSPECIFIEDorcid.org/0000-0002-7386-7495UNSPECIFIED
Racil, ZdenekUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Klimko, NikolayUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Sheppard, Donald C.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Herbrecht, RaoulUNSPECIFIEDorcid.org/0000-0002-9381-4876UNSPECIFIED
Chowdhary, AnuradhaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Cornely, Oliver A.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-223487
DOI: 10.1111/myc.12631
Journal or Publication Title: Mycoses
Volume: 60
Number: 8
Page Range: S. 508 - 517
Date: 2017
Publisher: WILEY
Place of Publication: HOBOKEN
ISSN: 1439-0507
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
JOINT CLINICAL GUIDELINES; TRANSPLANT RECIPIENTS; INVASIVE MUCORMYCOSIS; ESCMID-DAGGER; DIAGNOSIS; MANAGEMENT; DISEASES; ASPERGILLOSIS; SURVEILLANCE; FUSARIOSISMultiple languages
Dermatology; MycologyMultiple languages
Refereed: Yes
URI: http://kups.ub.uni-koeln.de/id/eprint/22348

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