March, Stefanie, Andrich, Silke, Drepper, Johannes, Horenkamp-Sonntag, Dirk, Icks, Andrea, Ihle, Peter, Kieschke, Joachim, Kollhorst, Bianca ORCID: 0000-0001-5964-954X, Maier, Birga, Meyer, Ingo, Mueller, Gabriele, Ohlmeier, Christoph, Peschke, Dirk, Richter, Adrian, Rosenbusch, Marie-Luise, Scholten, Nadine, Schulz, Mandy, Stallmann, Christoph, Swart, Enno, Wobbe-Ribinski, Stefanie, Wolter, Antke, Zeidler, Jan and Hoffmann, Falk ORCID: 0000-0003-0182-5373 (2020). Good Practice Data Linkage (GPD): A Translation of the German Version dagger. Int. J. Environ. Res. Public Health, 17 (21). BASEL: MDPI. ISSN 1660-4601

Full text not available from this repository.

Abstract

The data linkage of different data sources for research purposes is being increasingly used in recent years. However, generally accepted methodological guidance is missing. The aim of this article is to provide methodological guidelines and recommendations for research projects that have been consented to across different German research societies. Another aim is to endow readers with a checklist for the critical appraisal of research proposals and articles. This Good Practice Data Linkage (GPD) was already published in German in 2019, but the aspects mentioned can easily be transferred to an international context, especially for other European Union (EU) member states. Therefore, it is now also published in English. Since 2016, an expert panel of members of different German scientific societies have worked together and developed seven guidelines with a total of 27 practical recommendations. These recommendations include (1) the research objectives, research questions, data sources, and resources; (2) the data infrastructure and data flow; (3) data protection; (4) ethics; (5) the key variables and linkage methods; (6) data validation/quality assurance; and (7) the long-term use of data for questions still to be determined. The authors provide a rationale for each recommendation. Future revisions will include new developments in science and updates of data privacy regulations.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
March, StefanieUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Andrich, SilkeUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Drepper, JohannesUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Horenkamp-Sonntag, DirkUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Icks, AndreaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ihle, PeterUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kieschke, JoachimUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kollhorst, BiancaUNSPECIFIEDorcid.org/0000-0001-5964-954XUNSPECIFIED
Maier, BirgaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Meyer, IngoUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Mueller, GabrieleUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ohlmeier, ChristophUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Peschke, DirkUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Richter, AdrianUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Rosenbusch, Marie-LuiseUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Scholten, NadineUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Schulz, MandyUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Stallmann, ChristophUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Swart, EnnoUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Wobbe-Ribinski, StefanieUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Wolter, AntkeUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Zeidler, JanUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Hoffmann, FalkUNSPECIFIEDorcid.org/0000-0003-0182-5373UNSPECIFIED
URN: urn:nbn:de:hbz:38-313478
DOI: 10.3390/ijerph17217852
Journal or Publication Title: Int. J. Environ. Res. Public Health
Volume: 17
Number: 21
Date: 2020
Publisher: MDPI
Place of Publication: BASEL
ISSN: 1660-4601
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
PRESERVING RECORD LINKAGE; DATA QUALITY ASSESSMENT; HEALTH-INSURANCE DATA; DATA PROTECTION; SECONDARY DATA; REGISTRY DATA; CLAIMS DATA; COHORT; GUIDELINESMultiple languages
Environmental Sciences; Public, Environmental & Occupational HealthMultiple languages
URI: http://kups.ub.uni-koeln.de/id/eprint/31347

Downloads

Downloads per month over past year

Altmetric

Export

Actions (login required)

View Item View Item